Public Acceptability of Data Sharing Between the Public, Private and Third Sectors for Research Purposes

Report of a deliberative research project on the public's attitudes towards data sharing. It focuses particularly on a) the public's opinion about data sharing with the private and third sector; b) the acceptability of different methods for sharing benefits gained from the use of their data; and c) the appeal of different methods for empowering citizens in decision making about the use of their data.


APPENDIX F: PROMPT CARDS CONTAINING EXAMPLES OF ORGANISATIONS, DATA TYPE AND DATA USES

Examples of organisations (each shown on a separate card)
Public sector: Private sector: Third sector:
Scottish Government Pharmaceutical companies and private health & social care Health & social care charities
NHS Supermarkets and other shops/ retailers Homelessness & housing charities
Police Banking and financial Services Children's charities
Local councils Security & surveillance companies Social enterprises (e.g. the Big Issue)
Social work services (e.g. G4S) & private law firms Pressure groups/ non-governmental organisations (e.g. Greenpeace/British Medical Association)
Internet service providers and social media

Examples of data types (each displayed on a separate card) Examples of data uses (each displayed on a separate card)
Health records To develop new drugs or products
Education To plan & improve services (e.g. the number/types of hospitals needed in an area)
Police & criminal justice records To understand the public's behaviour (e.g. diet and exercise, use of public transport)
Benefits claimed Understand health, illness and disease
Social work records Learn about the population (e.g. whether or not the population is ageing)
Housing To inform and test the effect of policy (e.g. whether free school meals help to improve children's health)
Personal characteristics (e.g. age, sex, ethnicity religion)
Postcode & type of area you live

Contact

Email: Wendy van der Neut

Back to top