Information

Neurological Framework Funding: list of organisations funded

List of funding recipients to support the implementation of the Neurological care and support: framework for action 2020-2025.


This page provides information on projects funded through the neurological care and support: framework for action - 2020 to 2025

The framework aims to ensure people can access personalised care and support regardless of their condition or where in Scotland they live. Over five years, we are investing £4.5 million of funding to deliver the framework’s commitments.

Funding for 2022 to 2023

The following projects have been confirmed for funding for 2022 to 2023 (round three).

Action for M.E., ME Association, #ME Action Scotland and The 25% ME Group

 

Project summary

Update and further disseminate the ‘Learn About M.E.’ CPD training module for clinicians and medical students and produce three podcasts featuring professionals and patients, evaluate the impacts and present projects findings and support implementation of updated ME/CFS guidance in Scotland.

2022 to 2023 amount

£10,750

Cerebral Palsy Scotland

 

Project summary

CP Connect - Development of flexible specialist support for adults with cerebral palsy.

2022 to 2023 amount

£38,198

Epilepsy Scotland

 

Project summary

Improving mental health outcomes for people with epilepsy (PWE). To improve NHS services and build on our successful ongoing pilot project with NHS Lothian by evaluating electronic, community-based screening for depression, anxiety, and suicidality in PWE.

2022 to 2023 amount

£41,793

The Migraine Trust, NHS Grampian, Pharmacy Medicines Directorate

 

Project summary

With support from NHS Grampian and the Pharmacy Medicines Directorate, we will work with community, primary and secondary care pharmacists to help people with migraines manage their symptoms and treatments more effectively.

2022 to 2023 amount

£78,535.42

NHS Greater Glasgow and Clyde (NHS GGC) and partners

 

Project summary

Partnership Delivery Group. Key framework commitments will be met using existing service providers in collaboration with patients, carers and neurology voices to ensure enhanced patient experience and to support people to live well.

2022 to 2023 amount

£103,950

NHS Lothian

 

Project summary

Maintenance of ‘neurosymptoms’ digital platform and applications, which provide accessible information to public/patients on functional neurological disorders.

2022 to 2023 amount

£10,000

PAMIS

 

Project summary

Providing a buddying system to three identified third sector organisations, which will: 

  • introduce postural care to the individuals and families they support
  • connect with allied health professionals linked to these services
  • share resources, support the creation of new information and a support network enabling self-management of postural care
  • deliver our tried and tested Introduction to Body Shape Protection education session

2022 to 2023 amount

£36,055.25

Parkinson’s UK Scotland Greater Glasgow Clyde NHS

 

Project summary

Linking Parkinson's Connect with exercise prescriptions in Greater Glasgow Clyde.

2022 to 2023 amount

£31,175

Quarriers

 

Project summary

Epilepsy Community Outreach (ECO): co-ordinating care through technology and workshops.

2022 to 2023 amount

£56,249

Quarriers, Epilepsy Connections and Lanarkshire Epilepsy

 

Project summary

Develop and host a nationalepilepsy collaborative across the third sector and NHS Scotland to bring about greater consistency in patient experience.

2022 to 2023 amount

£20,625

Strathcarron Hospice, Talking Mats Limited, Scottish Centre for Simulation and Clinical Human Factors (SCSC)

 

Project summary

Making end of life planning accessible - evaluating talking mats. This visual framework helps people with neurological condition express their views about anticipatory care planning.

2022 to 2023 amount

£24,916.67

The following projects are continuing from round two and will receive funding in 2022 to 2023.

Action for M.E. (lead partner), #MEAction Scotland, The ME Association, The 25% ME Group

 

Project summary

Continue to disseminate a free online CPD module on ME/CFS through a co-ordinated marketing campaign including the development and dissemination of six further podcasts.

2022 to 2023 amount

£10,452.67

Midlothian Health and Social Care Partnership

 

Project summary

To scope the unmet needs of the people living with a neurological condition and co-produce a Midlothian pathway plan and a subsequent direction from Midlothian IJB to NHS Lothian and Midlothian Council, which would direct service transformation and allocation of resources.

2022 to 2023 amount

£49,493

MS Society Scotland

 

Project summary

New phase (April 2021 – September 2022) of our pan-Scotland person centred virtual ‘wellbeing hub’. The hub benefits our community, i.e. people with Multiple Sclerosis (pwMS), who are at high risk from COVID-19.

2022 to 2023 amount

£33,256.67

Multiple Sclerosis Centre, Mid Argyll

 

Project summary

‘Lifeline’ services to people affected by various neurological conditions across Argyll and Bute.

2022 to 2023 amount

£22,575

NHS Greater Glasgow and Clyde

 

Project summary

PNES (psychogenic non-epileptic seizures) self-management and advice mobile app

2022 to 2023 amount

£21,266.67

NHS Orkney

 

Project summary

Develop an interlinked electronic resource which provides signposting to web resources held by NHS Orkney, NHS Inform and Voluntary Action Orkney that would act as a one-stop shop for people to access information about their condition, or that of their partner, relative or friend and the services available to them.

2022 to 2023 amount

£17,042.33

Parkinson’s UK Scotland and NHS Greater Glasgow and Clyde

 

Project summary

Further develop an integrated clinical and support service for people with Parkinson’s.

2022 to 2023 amount

£28,949

Quarriers

 

Project summary

Quarriers “lifestyle management project” seeks to develop a self-management ethos within the clinical setting of William Quarrier Scottish Epilepsy Centre (WQSEC).

2022 to 2023 amount

£8,524.57

Revive MS Support

 

Project summary

A pan-Scotland implementation of a proven, multi-stakeholder, technology-driven model of direct preventative, rehabilitative and palliative care and support for people with multiple sclerosis.

2022 to 2023 amount

£23,333.33

Thistle Health and Wellbeing

 

Project summary

Expand existing remote self-management programme, which primarily supports people in Edinburgh and the Lothians with conditions such as Parkinson’s, stroke, cerebral palsy, MS and epilepsy, to support 193 people living with a neurological condition in Fife.

2022 to 2023 amount

£21,477.95

Funded projects underway or completed

For rounds one (commenced October 2020) and two (commenced April 2021) of funding, the following projects have received support through the framework. 

We are seeking the consent of projects to share contact details on this website and until this is included, if you would like to get in touch with any of these projects, please email Clinical_Priorities@gov.scot.

Health and social care partnerships

Angus Health and Social Care Partnership

 

Enhanced community support model to support neurological care (due to complete July 2022).

Building upon the success of the enhanced community support model in Angus, this will develop a proactive approach to suit adults with neurological conditions, who are often younger, in order to capture patients prior to a crisis point.

Midlothian HSCP 

 

Scoping and planning Midlothian pathways (due to complete March 2023).

Scope the unmet needs of people living with a neurological condition and co-produce a Midlothian pathway plan, which will be used to inform allocation of resources to NHS Lothian and Midlothian Council.

NHS Forth Valley, Clackmannanshire/Stirling and Falkirk Health Social Care Partnerships 

 

Virtual Neurological Network (completion date deferred).

Establish a virtual local neurological network and scope out the current local service provision for people with neurological conditions to co-produce a service signposting directory.

Cross sector collaborations

Cerebral Palsy Scotland, NHS Ayrshire and Arran, ARC Scotland (Scottish Transitions Forum), University of Dundee

 

Good practice in models of transition (due to complete March 2022).

Round 1: produce evidence on the impact of transition from child to adult services for patients with neurological conditions and develop a set of neurology-specific guiding principles, a good practice framework and a model for evaluation of existing models of transition to inform best practice.

Round 2: undertake an evidence review and collaborative planning work to prepare for the development of neurology specific principles of good transition across the lifespan.

Chest Heart and Stroke Scotland, NHS Lothian, University of Edinburgh, POGO studio, Edinburgh Headway Group 

 

Tailored talks (due to complete March 2022).

Develop an innovative digital presentation platform which will deliver comprehensive information to people living with neurological conditions and carers, to support shared decision making, consent and signposting.

Parkinson’s UK and NHS Greater Glasgow and Clyde 

 

Parkinson’s self-management support (due to complete October 2022).

Develop an integrated clinical and support service for people with Parkinson’s to increase self-management, increase welfare support services and reduce symptoms associated with Parkinson’s.

Thistle Health and Wellbeing (lead partner), NHS Fife, Parkinson’s UK Scotland

 

Remote self-management programme (due to complete September 2022).

Work across Fife Health and Social Care Partnership to develop and deliver a remote self-management programme for people living with neurological conditions.

Third sector

Action for M.E. (lead partner), #MEAction Scotland, The ME Association, The 25% ME Group 

 

ME/CFS continuous professional development module (due to complete September 2022).

Develop and enable a free online continuous professional development module on ME/CFS to be available and promoted through a co-ordinated marketing campaign.

Cerebral Palsy Scotland 

 

CP connect (due to complete March 2022).

Deliver a flexible support service combining virtual and in person multi-disciplinary therapy for people with Cerebral Palsy across Scotland, directly responding to issues occurring for people with cerebral palsy during COVID-19 lockdown.

Epilepsy Connections 

 

Epilepsy counselling service (due to complete March 2022).

To test and evaluate a partnership model for the delivery of a dedicated online/phone counselling service for adults living with epilepsy.

MS Society Scotland 

 

MS wellbeing hub (due to complete December 2022).

Through the MS Society’s ‘wellbeing hub’, deliver online and telephone sessions supporting the physical and emotional wellbeing of people living with multiple sclerosis in response to the COVID-19 pandemic.

Multiple Sclerosis Centre, Mid Argyll 

 

Neurological support services Across Argyll and Bute (due to complete December 2023).

Mental, physical and social support, and blended face to face and virtual therapies to people affected by various neurological conditions across Argyll and Bute, including those affected by long Covid.

Pain Association Scotland

 

Self-management support for carers (completed March 2021).

Deliver five, live online self-management courses to help support the resilience and wellbeing of unpaid carers of people living with neurological conditions, within the context of the challenges they have faced during COVID-19 lockdowns.

Pain Association Scotland

 

Self-management support for carers (completed March 2021).

Deliver five, live online self-management courses to help support the resilience and wellbeing of unpaid carers of people living with neurological conditions, within the context of the challenges they have faced during COVID-19 lockdowns.

Progressive Supranuclear Palsy Association PSPA 

 

PSP support research (completed March 2021).

Conduct research into the provision of support for people living with progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD).

NHS Boards

NHS Grampian

 

Study of GP support for FND (due to complete July 2022).

Conduct a pilot study to investigate methods of enhancing knowledge and diagnosis of functional neurological disorder within GP surgeries.

NHS Greater Glasgow and Clyde 

 

Epilepsy register (due to complete March 2023).

Establish and roll out an epilepsy register in NHS Greater Glasgow and Clyde, NHS Tayside and NHS Lanarkshire.

NHS Greater Glasgow and Clyde 

 

Models of care for movement disorders (completed March 2021).

Establish a model of care with an advanced practitioner physiotherapist in neurology, focussing on evidencing the model in the movement disorders service, commencing with Parkinson’s disease.

NHS Greater Glasgow and Clyde in collaboration with NHS Ayrshire and Arran and NHS Grampian 

 

Development of self-management app for non-epileptic seizure (due to complete February 2023).

Develop an educational app for people with psychogenic non-epileptic seizures as a self-management resource hosted by the NHS Scotland Right Decision Service platform.

NHS Lanarkshire 

 

Brain injury self-management programme (due to complete June 2022).

To develop a free online self-management programme designed for people following acquired brain injury and their family members.

NHS Lanarkshire

 

Community brain injury team LearnPro module (due to complete March 2022).

To develop and publish, via Learnpro, a learning module on the basics of acquired brain injury that can be accessed by medical and NMAHP staff of all grades. 

NHS Lanarkshire

 

Rehabilitation online training resource (due to complete March 2022).

Create a Goal setting and Action Planning (G-AP) online training resource for staff in community rehabilitation settings, evaluate the usefulness and impact of the G-AP training resource in three community teams delivering rehabilitation to people with neurological conditions.

NHS Lanarkshire

 

Brain injury patient held records (completed March 2021).

Develop a patient held record (PHR) for the patients of the NHS Lanarkshire Community Brain Injury Team.

NHS Lothian 

 

FND neurosymptoms website and app (due to complete March 2022).

Develop a digital platform for functional neurological disorder (FND).

NHS Orkney

 

Resources and signposting for neurological conditions (due to complete September 2022).

Round 1 - develop an interlinked electronic resource on neurological conditions and services signposting to resources held by NHS Orkney, NHS Inform and Voluntary Action Orkney, develop pathways clarifying local support and best practice for neuro conditions and provide anticipatory care planning education.

Round 2 - scope services that provide care, support, information and advice to those affected by neurological conditions in Orkney to identify strengths, duplication, and gaps.

NHS Tayside

 

Breakthrough series collaborative (due to complete November 2022).

Develop a ‘Breakthrough Series Collaborative’ learning system, bringing together key neuroscience stakeholders from primary and secondary care, health and social care partnerships, allied health professionals, hospital management, third sector organisations and patients.

 

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