Publication - Transparency data

Neurological Framework Funding : list of organisations funded

Published: 11 Oct 2020
Last updated: 24 Mar 2021 - see all updates

List of funding recipients to support the implementation of the Neurological care and support: framework for action 2020-25.

Published:
11 Oct 2020
Neurological Framework Funding : list of organisations funded

The Neurological care and support: framework for action - 2020 to 2025 aims to ensure people can access personalised care and support regardless of their condition or where in Scotland they live.

It is providing funding to projects which support people with neurological conditions.

Projects to receive funding under Rounds 1 and 2 are below. 

To note, there are a number of applications for Round 2, which are not listed below and we are exploring further and will reach a decision after the election period.

Round 2 funding recipients

Organisation

Brief outline of project

2021/22 amount

Thistle Health and Wellbeing (lead partner),
NHS Fife,
Parkinson’s UK Scotland

Work across Fife Health and Social Care Partnership to develop and deliver a remote self-management programme for people living with neurological conditions.

£42,956

Spina Bifida Hydrocephalus Scotland (SBH Scotland)

Develop a Wellbeing Matrix as a tool for decision support and

an enhanced healthy ageing hub to improve self-management among

adults affected by SBH.

£30,964

Cerebral Palsy Scotland, NHS Ayrshire and Arran ARC Scotland (Scottish Transitions Forum), University of Dundee

Produce evidence on the impact of transition for patients with neurological conditions and develop a set of neurology specific guiding principles, a good practice framework

and a model for evaluation of existing models of transition to inform best practice.

£19,628

 

Quarriers

Develop a programme to empower people with complex epilepsy to make informed decisions about their own care; improving people’s capacity

for self-management, increasing their resilience and confidence.

£51,147

Midlothian Health & Social care Partnership

Scope the unmet needs of people living with a neurological condition and co-produce a Midlothian pathway plan, which will be used to inform allocation of resources to NHS Lothian and Midlothian Council.

£98,986

Action for M.E. (lead partner)
#MEAction Scotland
The ME Association
The 25% ME Group

Enable a free online CPD module on ME/CFS to be available and promoted through a coordinated marketing campaign.

£20,905

NHS Orkney

Develop an interlinked electronic resource on neurological conditions and services signposting to resources held by NHS Orkney, NHS Inform and Voluntary Action Orkney; develop pathways clarifying local support and best practice for neuro conditions; provide Anticipatory Care Planning education.

£51,127

Epilepsy Connections

To test and evaluate a partnership model for the delivery of a dedicated online / phone counselling service for adults living with epilepsy.

£9,987

NHS Greater Glasgow & Clyde in collaboration with NHS Ayrshire & Arran and NHS Grampian

Develop an educational App for people with Psychogenic Non-Epileptic Seizures as a self-management resource hosted by the NHS Scotland Right Decision Service platform.

£42,533

NHS Lanarkshire

Create a Goal setting and Action Planning (G-AP) online training resource for staff in community rehabilitation settings; evaluate the usefulness and impact of the G-AP training resource in three community teams delivering rehabilitation to people with neurological conditions.

£30,552

NHS Lothian

Develop a Digital Platform for Functional Neurological Disorder (FND).

£25,000

(Continuation funding)

NHS Tayside

Develop a ‘Breakthrough Series Collaborative’ learning system, bringing together key neuroscience stakeholders from primary and secondary care, health and social care partnerships, allied health professionals, hospital management, third sector organisations and patients

£76,000

(Continuation funding)

Chest Heart & Stroke Scotland,
NHS Lothian,
University of Edinburgh, POGO studio,
Edinburgh Headway Group

Develop an innovative digital presentation platform which will deliver comprehensive information to people living with neurological conditions and carers, to support shared decision making, consent and signposting

£69,000

(Continuation funding)

NHS Greater Glasgow & Clyde

Establish and roll out an Epilepsy register in NHS Greater Glasgow and Clyde, NHS Tayside and NHS Lanarkshire

£78,690

(Continuation funding)

Parkinson’s UK Scotland and NHS Greater Glasgow & Clyde

Develop an integrated clinical and support service for people with

Parkinson’s to increase self management, increase welfare support services and reduce symptoms associated with Parkinson’s.

£55,902

(Continuation funding)

Cerebral Palsy Scotland

Deliver a flexible support service combining virtual and in person multi-disciplinary therapy for people with Cerebral Palsy across Scotland, directly responding to issues occurring for people with Cerebral Palsy during COVID-19 lockdown

£31,043

(Continuation funding)

Round 1 funding recipients

Organisation

Brief outline of project

2020/21 amount

NHS Forth Valley, Clackmannanshire / Stirling and Falkirk Health and Social Care Partnerships

Establish a virtual local neurological network and scope out the current local service provision for people with neurological conditions to co-produce a service signposting directory

£29,340

NHS Ayrshire and Arran, Cerebral Palsy Scotland and ARC Scotland

Undertake an evidence review and collaborative planning work to prepare for the development of neurology specific principles of good transition across the lifespan

£6,800

NHS Orkney

Scope services that provide care, support, information and advice to those affected by neurological conditions in Orkney to identify strengths, duplication, and gaps

£12,452

NHS Greater Glasgow & Clyde

Establish a model of care with an Advanced Practitioner Physiotherapist in Neurology, focussing on evidencing the model in the Movement Disorders service, commencing with Parkinson’s disease

£23,802

Pain Association Scotland

Deliver five live online self management courses to help support the resilience and wellbeing of unpaid carers of people living with neurological conditions, within the context of the  challenges they have faced during the COVID-19 lockdown

£5,250

NHS Lanarkshire 

Develop a patient held record (PHR) for the patients of the NHS Lanarkshire Community Brain Injury Team

£4,750

NHS Lothian

Develop a digital platform for Functional Neurological Disorder (FND)

£40,000

NHS Greater Glasgow & Clyde

Establish and roll out an Epilepsy register in NHS Greater Glasgow and Clyde, NHS Tayside and NHS Lanarkshire

£42,100

PSPA

Conduct research into the provision of support for people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD)

£13,690

Action for M.E. (lead partner) #MEAction Scotland The ME Association The 25% ME Group
 
Dissemination of a CPD module to clinicians related to GPs

£11,000

Cerebral Palsy Scotland

Deliver a flexible support service combining virtual and in person multi-disciplinary therapy for people with Cerebral Palsy across Scotland, directly responding to issues occurring for people with Cerebral Palsy during COVID-19 lockdown

£17,270

MS Society

Through the MS Society’s ‘Wellbeing Hub’, deliver online and telephone sessions supporting the physical and emotional wellbeing of people living with MS in response to the COVID-19 pandemic 

£68,123

Parkinson’s UK and NHS Greater Glasgow & Clyde

Develop an integrated clinical and support service for People with

Parkinson’s to increase self management, increase welfare support services and reduce symptoms associated with Parkinson’s.

£26,983

Quarriers

Enhance the support available for people living with Epilepsy across Aberdeen, Aberdeenshire, Moray and Fife, by harnessing the potential of digital and online technology

£15,351

NHS Tayside

Develop a ‘Breakthrough Series Collaborative’ learning system, bringing together key neuroscience stakeholders from primary and secondary care, health and social care partnerships, allied health professionals, hospital management, third sector organisations and patients

£55,000

NHS Grampian

Conduct a pilot study to investigate methods of enhancing knowledge and diagnosis of Functional Neurological Disorder within GP surgeries

£15,100

Chest Heart & Stroke Scotland,
NHS Lothian,
University of Edinburgh, POGO studio,
Edinburgh Headway Group

Develop an innovative digital presentation platform which will deliver comprehensive information to people living with neurological conditions and carers, to support shared decision making, consent and signposting

£105,524

 

TOTAL

£492,535

 

First published: 11 Oct 2020 Last updated: 24 Mar 2021 -