Neurological Framework Funding: list of organisations funded

Patient and carer information

NHS Greater Glasgow and Clyde - Non-epileptic Seizures App

Area covered: Scotland wide
Developed an educational App for people with psychogenic non-epileptic seizures (or dissociative seizures) as a self-management resource hosted on the NHS Scotland Right Decision Service platform, and self-management and advice mobile app. Dissociative seizures - Right Decisions
Funding given: 2021-2022: £63,800
Completed October 2024
Final report available on request

NHS Lanarkshire - Brain Injury Self-management App

Area covered: Lanarkshire
Developed a free online self-management programme designed for people following acquired brain injury and their family members.
​​​​​​Funding given: 2021-2022: £23,600
Completion Date: April 2022
Final report available on request

NHS Lanarkshire - Patient Hand Held Record

Area covered: Lanarkshire
Developed a patient held record for patients of the NHS Lanarkshire Community Brain Injury Team
Funding given: 2020-2021: £4,750
Completion Date: April 2021
Final report available on request

NHS Lothian – neurosymptoms.org

Area covered: National/international
Functional Neurological Disorder (FND) – A Patient's Guide to FND Developed and maintained a digital platform for Functional Neurological Disorder (FND), which provides accessible information to public, patients on FND.
Funding given: 2020-2021: £65,000, 2022-2023: £10,000
Total of £75,000
Completed: March 2023
Final report – March 2023

PAMIS - Improving Postural Care

Area covered: Scotland wide
Provided a buddying system to three third sector organisations, which: introduced postural care to the individuals and families they support and connected with allied health professionals linked to these services; shared resources and supported the creation of new information and a support network enabling self-management of postural care; and delivered a tried and tested ‘Introduction to Body Shape Protection’ education session.
Funding given: £39,333
Completed: June 2023
Final report.

University of Edinburgh, POGO Digital Healthcare, Chest Heart and Stroke Scotland - Tailored Talks

Area covered: Scotland wide

Digital communication platform to promote shared decision-making. Tailored Talks allows health and social care professionals and people working in third sector organisations to provide information which is tailored to each individual patient’s needs. This information can be shared on screen during face-to-face meetings/consultations, on paper (for people without access to digital technology or who are not keen to use it), and remotely by emailed pdf or via weblinks so that patients and their carers can access the information on their mobile devices, PCs or laptop computers. 
Funding given: 2020-2021: £174,524
Final report – August 2022
Sign in - Tailored Talks (tailored-talks.com)