Neurological Framework Funding: list of organisations funded

Self-management – supported self-management

Epilepsy Connections and partners

Area covered: Aberdeen, Ayrshire, Clackmannanshire, Falkirk and Stirling
Counselling Service - Tested and evaluated a partnership model for the delivery of a dedicated online/phone counselling service for adults living with epilepsy.
Funding given - 2021-2022: £9,987
Completed: March 2022
Final report – March 2022

MS Society Scotland

Area covered: Scotland wide
​​​​​The MS Society’s Wellbeing Hub delivered online and telephone sessions supporting the physical and emotional wellbeing of people living with MS. The ‘Hub’ was developed in partnership with people who use services and has provided support to help improve participants’ physical and emotional wellbeing, including overcoming isolation through connections made.
Funding given: 2020-2021: £68,123, 2021-2022: £99,770
Total of £167,893
Completed: October 2022
Final report – October 2022

Mid-Argyll MS Centre

Area covered: Mid Argyll, Kintyre, Islay and Jura
Provided ‘Lifeline’ services to people affected by various neurological conditions across Argyll and Bute by supporting the person as a whole, building relationships and connecting them with others who can support them on their life journey.
Funding given: 2021-2022: £67,725
Completed date: November 2022
Final report – March 2023

Parkinson’s UK and NHS Greater Glasgow and Clyde

Area covered: NHS Greater Glasgow and Clyde, scaling up to other areas.
Parkinson’s Connect is an integrated clinical and support service for people with Parkinson’s. An online referral tool that links people from statutory services was developed. The service enables people to self-manage their condition, provides welfare support services, and in phase 3 integrated provision of physical activity to help reduce symptoms associated with Parkinson’s.
Funding given: 2020-2021: £26,983, 2021-2022: £84,851, 2022-2023: £62,350
Total of £174,184
Due to complete October 2023. Final report pending.

Quarriers

Area covered: Scotland wide
Lifestyle Management – Working with the Thistle Foundation, this project developed a programme to empower people with complex epilepsy to make informed decisions about their own care; improved people’s capacity for self-management, increasing their resilience and confidence. 
Funding given: 2021-2022: £59,672
Completed: June 2023
Final report – June 2023

Quarriers

Area covered: Aberdeenshire, Moray and Fife,
Phase 1, Epilepsy Community Outreach,  delivered innovative virtual Review Clinics increasing attendance by improving access to technology. Collaboration with GP clinics provides streamlined, community-led, multi-agency support that can quickly and accurately diagnose patients current needs and inform critical on-going support.
In phase 2 partnership with Epilepsy Scotland and Lanarkshire Epilepsy, Quarriers has developed needs-led Epilepsy Awareness workshops, delivered to improve work-force capacity targeting job centres, employer, local authorities and NHS colleagues.
Funding given: 2020-2021: £15,351, 2022-2023: £56,249
Total of £71,600
Phase 1: Completed April 2021, Final report available on request
Round 3: Completed April 2023, report to be submitted

Pain Association Scotland

Area covered: Scotland-wide
Developed five live online self-management courses to help support the resilience and wellbeing of unpaid carers of people living with neurological conditions, within the context of the challenges they faced during the COVID-19 lockdown. Courses are available by visiting the Pain Association website.
Funding given - 2020-2021: £5,250
Completed: April 2021
Final report available on request
Blog post

Revive MS Connect

Area covered: Glasgow and other parts of Scotland
Model of Preventative, Rehabilitative & Palliative Care. A pan-Scotland implementation of a proven, multi-stakeholder, technology-driven model of direct preventative, rehabilitative and palliative care and support for people with Multiple Sclerosis.
Funding given: 2021-2022: £70,000
Completed: December 2022
Final report – December 2022

Spina Bifida Hydrocephalus Scotland

Area covered: Scotland-wide
Wellbeing and Ageing Hub – Developed a Wellbeing Matrix as a tool for decision support and an enhanced healthy ageing hub to improve self-management among adults affected by spina bifida hydrocephalus.  Wellbeing App (myCarepod) - features of the app include a ‘Wellmometer’ where people can track their mood, a pain assessment monitor, a health record and emergency summary for healthcare appointments and emergencies, educational resources and vital signs monitors. An internal messaging feature allows people to contact their family support worker and friends/family via the app. Find out more about the app.
Funding given - 2021-2022: £30,964
Completed date: July 2022
Final report - August 2022

Thistle Health and Wellbeing

Area covered: Fife and Lothian

Thistle Neurological Wellbeing Service project expanded its self-management programme into Fife. Its model of support was re-developed to a hybrid of in-person and remote service delivery, allowing people to be referred by a health care professional or self-refer for support. The programme was also expanded to individuals in Edinburgh and the Lothians with stroke, cerebral palsy, MS and epilepsy.
Funding given: 2021-2022: £64,434
Completed: January 2023
Final report – February 2023