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8. Report on the Future Delivery of Public Services by the Commission chaired by Dr Campbell Christie. Published on 29 June 2011.
11. Joint Strategic Commissioning Learning and Development Framework published by Scottish Government, NHS Scotland, COSLA and the Joint Improvement Team in 2012 http://www.jitscotland.org.uk/action-areas/commissioning/
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13. Modified from Dahlgren G, Whitehead M. Tackling inequalities in health: what can we learn from what has been tried? Background paper for The Kings Fund International Seminar on Tackling Health Inequalities.Ditchley Park, Oxford: King's Fund
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22. NHSScotland Chief Executive's Annual Report 2011/12 http://www.scotland.gov.uk/Publications/2012/11/5027
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31. National Oral Health Improvement Strategy for Priority Groups. Scottish Government, May 2012 http://www.scotland.gov.uk/Publications/2012/05/7031/0
33. Guidelines for meeting Audiological Needs of Adults with Learning Disabilities. NHS Scotland 2009 www.scotland.gov.uk/Resource/Doc/924/0092407.doc
36. NHS Quality Improvement Scotland, 2009
37. Brown et al. 2012; Bradbury-Jones et al. 2013
38. NHS Health Scotland 'Health Needs Assessment Report - People with Learning Disabilities in Scotland' 2004
40. Estimating Future Needs/Demand for support for adults with learning disabilities in England, Institute for Health Research, Lancaster University 2004
41. Kerr,D. Dementia in people with intellectual disabilities. Centre for Research on Families and Relationships.University of Edinburgh
42. Holland,A.J Hon,J.Hubbart,F.A., Stevens,V.F.Watson,P.(1998). Population based study of prevalence and presentation of dementia in adults with Down's syndrome. British Journal of Psychiatry.172,493-498
43. Prasher, V.P., End Stage Dementia in adults with Down's syndrome. International Journal of geriatric Psychiatry, 1995.10:p.3
44. Kerr,D., Understanding Learning Disability and Dementia. Developing Effective Interventions. Jessica Kingsley Publishers London and Philadelphia 2007
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49. Summerfield C, Gill B. Social Trends 35. London: Office for National Statistics, 2005.
50. Gunaratnam Y, A briefing paper for managers and trustees. Widening Access to hospice care November 2000
51. Tuffrey-Wijne I. Living with learning disabilities, dying with cancer: thirteen personal stories. London. Jessica Kingsley 2010
52. Tuffrey-Wijne I. How to break bad news.To people with intellectual disabilities.A guide for carers and professionals. London.Jessicaa Kingsley 2013.
53. Disability Rights Commission(DRC).Equal treatment:closing the gap-A formal investigation into the physical health inequalities experienced by people with learning disabilities and/or mental health problems.London:DRC, 2006.
54. Institute for Health Research. Estimating Future Need / Demand for Support for Adults with Learning Disabilities in England. Institute for Health Research, Lancaster University,2004.
55. National End of Life Care Programme. The Route to succeed in the end of life care-achieving quality for people with learning disabilities. London :National End of Life Care Programme
56. Oswin, M. 1991. Am I Allowed to Cry? A study of bereavement amongst people who have learning difficulties. London: Human Horizons
57. Doka, 2002 Living with grief: loss in later life. Hospice Foundation of America
59. How is it going? Curtice 2006, SCLD Glasgow
65. Disability Rights Commission (2006a). Disability Discrimination Act: Provision and Use of Transport Vehicles, Statutory Code of Practice, Supplement to Part 3 Code of Practice, London: The Stationery Office
66. Ibid (p12)
67. National Local Area Co-Ordination Development Team. (2010a). Local Area Co-Ordination in Scotland: 2009-2010, Glasgow: Scottish Consortium for Learning Disability
68. http://www.scld.org.uk/local-area-co-ordination/contacts-list [accessed on the 18/04/13]
69. National Local Area Co-Ordination Development Team. (2010b). Values into Practice: A Framework for Local Area Co-ordination in Scotland, Glasgow: Scottish Consortium for Learning Disability, available at http://www.scld.org.uk/library-publications/values-practice-framework [accessed on the 31/05/13]
70. Ibid (pages 8-9)
72. Researched and published by Lemos&Crane working with the Foundation for People with Learning Disabilities and supported by Esmée Fairbairn Foundation. © Lemos&Crane 2012
73. SCLD esay statistics 2011
74. Growing up in Scotland: Parenting and the Community Context Report, Scottish Government 2009 http://www.scotland.gov.uk/Publications/2009/03/13143448/4
75. Allan, G. 2005. 'Boundaries of Friendship' in McKie, L. and Cunningham-Burley, S. (eds.) Families in Society: Boundaries and Relationships. : Policy Press.
78. Caring Together The Carers Strategy for Scotland 2010 - 2015, Scottish Government, http://www.scotland.gov.uk/Publications/2010/07/23153304/0
85. The Doran Review http://www.scotland.gov.uk/Publications/2012/11/7084/0
96. Beyer, S (2008). An Evaluation of the Outcomes of Supported Employment in North Lanarkshire, North Lanarkshire: North Lanarkshire Council
100. Heslop, P., Blair, P., Fleming, P. et al. (2012) Conﬁdential Inquiry into premature deaths of people with learning disabilities (CIPOLD). University of Bristol: Norah Fry Research Centre
101. Hogg, J., Juhlberg, K. & Lambe, L. (2007) Policy, service pathways and mortality: a 10-year longitudinal study of people with profound intellectual and multiple disabilities. Journal of Intellectual Disability Research, 51, 366-376.
102. Garrard, B., Lambe, L. & Hogg, J. (2010) Invasive Procedures: Minimising Risks and Maximising Rights. Improving practice in the delivery of invasive procedures for people with profound and multiple learning disabilities -Project Report and recommendations. Dundee: PAMIS & White Top Research Unit, University of Dundee.
103. Hogg, J. (2012) Delivering Invasive Procedures to People with Profound and Multiple Learning Disabilities. How service providers succeed. Dundee: PAMIS & White Top Research Unit, University of Dundee.
104. Turner, S. (2013) Improving the uptake of health checks for adults with learning disabilities: evidence into practice report no.6. Improving Health and Lives: Learning Disability Observatory
105. British Society for Disability and Oral Health & Faculty of Dental Surgery (2012) Clinical Guidelines and Integrated Pathways for the Oral Health Care of People with Learning Disabilities: Reviewed and Updated 2012. London: The Royal College of Surgeons of England
106. Scottish Government (2010) Supporting children's learning: code of practice, revised edition. Edinburgh: Scottish Government.
107. Mansell, J. (2010) Raising our sights: services for adults with profound intellectual and multiple disabilities. Tizard Centre: University of Kent.
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115. Phillip, Lambe & Hogg, 2005
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123. National Statistics, 2004, Chapter 8 www.esds.ac.uk/doc/5269/mrdoc/pdf/5269technicalreport.pdf
124. Emerson & Baines, 2010
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Email: Julie Crawford