Social Security Experience Panels - Seldom Heard research programme: end of life

Introduction

The Social Security Experience Panels were established by researchers in the Scottish Government in 2017. Scottish Government researchers work with members to bring the voices of those with lived experience into the design of the new social security system in Scotland, as run by Social Security Scotland. There are groups of people with lived experience that are less likely to be represented on the panels, so the "Seldom Heard Voices" qualitative research programme was set up to address this gap. It ensures that groups who need to be treated with particular sensitivity and those who are marginalised or dispersed, also have a voice in designing social security services.

There are four groups identified as 'seldom heard' in this research programme. They are Mobile Populations, Vulnerable Groups, End of Life, and Carers and Care Experienced. For each group two waves of fieldwork are being undertaken.

This is the report for the first wave of the End of Life strand. The fieldwork was undertaken by KSO Research Limited between January and March of 2020. The analysis and reporting was carried out by Scottish Government researchers.

The second stage of research is in progress at the time of writing and is due to be published in 2022.