Social Security Experience Panels - Seldom Heard research programme: end of life - visual summary

This visual summary outlines the main findings of the first wave of research with bereaved people and those at the end of life as part of the ‘Seldom Heard Voices’ research programme.

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About the research

For each of the four groups, two stages of research are being carried out. This summary sets out the findings from the first stage of research with the End of Life group.

The End of Life group includes the following:

  • People with a terminal illness
  • Bereaved people

The research involved 11 participants: 5 participants living with a terminal illness, 5 carers of people with a terminal illness, and 1 bereaved participant.

8 Interviews with 11 participants

The research took place between Jan 2020 - Mar 2020

The research explored views on:

  • Previous and current experiences of the benefit system
  • Finding out about benefit eligibility
  • Benefit application processes
  • Support to access the benefits system
  • Barriers to access benefits
  • Improving the benefits system



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