Myalgic Encephalomyelitis/Chronic Fatigue Syndrome NICE guideline: stakeholder review

An independently-produced stakeholder review of the NICE guideline on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). It makes recommendations regarding the implementation of the guideline in Scotland, and identifying and addressing priorities for service improvement in ME/CFS care.

1. Introduction

1.1 In December 2021, the Scottish Government commissioned Blake Stevenson Ltd to engage with stakeholders, including national charities, local support groups, clinicians, representatives from Royal Colleges and people with the lived experience of ME/CFS community, to gather their views on the ME/CFS National Institute for Health and Care Excellence (NICE) guideline.

1.2 This report presents the stakeholders' views of the NICE guideline and the actions they think are required to implement the NICE guideline in Scotland.

1.3 In chapter 2, the context for this work and the approach to stakeholder engagement is summarised.

1.4 In chapters 3 and 4 the findings from the engagement exercise are presented and Chapter 5 identifies next steps for implementation, summarises the key findings and presents recommendations.



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