Opt out organ donation: a rapid evidence review

Information about the review that was undertaken to inform a potential move to a soft opt out system in Scotland.


7. References

Abadie, A, Gay, S, 2004. The impact of presumed consent legislation on cadaveric organ donation: A cross country study. p. 1064.

Bendorf, A., Pussel, B. & Kelly, J. a. K. H., 2013. Socioeconomic, demographic and policy comparisons of living and deceased kidney transplantation rates across 53 countires. Nephrology, 18(9).

Bilgel, F., 2013. The effectiveness of transplant legislation, procedures and management. Health Policy, 110(131), pp. 229 - 242.

Bruce, C. & Koch, P., 2017. Flawed Assumptions: Ethical Problems With Proposed Presumed Consent Legislation. American Journal of Transplantation , 17(12), pp. 3262- 3263.

Burra, P. & De Bona, M., 2007. Quality of life following organ transplantation. Transplant International , 20(5), pp. 397- 409.

Cameron, A. M. et al., 2013. Social Media and Organ Donor Registration: The Facebook Effect. American journal of transplantation , 13(8), pp. 2059- 2065.

Coad, L., Carter, N. & Ling, J., 2013. Attitudes of young adults from the UK towards. Transplantation Research , 2(9).

Cox, R., 2016. Survey of Public Attitudes to Organ Donation: Wave 10, 11 and 12, Cardiff: Welsh Government .

Csillag, C., 1998. Brazil abolishes 'presumed consent' in organ donation. Lancet, Volume 352 - 1367.

Dalen, H, 2014. Comparing the effects of defaults in organ donation systems. Science and Medicine, Volume 106, pp. 137 - 142.

Davidai, S, 2012. The meanining of default options for potential donors. PNAS, 109(38), pp. 15201 - 15205.

Davis, C., 2006. The influence of religion on organ donation and transplant amongst the Black Caribbean and African population - a pilot study in the United Kingdom. Ethn Dis, Volume 1.

Dominguez, J., 2013. Presumed Consent Legislation Failed to Improve Organ Donation in Chile. Volume 45.

Glasper, E., 2018. Increasing Organ Donation for Children Who Need Transplants. Adolescent Nursing, 41(1).

Glendinning, R. & McHugh, S., 2017. Evaluation of the Human Transplantation (Wales) Act: NHS Wales Staff Survey Wave 2, Cardiff: Welsh Government.

Haddow, G., 2006. "Because You're Worth It?" The Taking and Selling of Transplantable Organs. Journal of Mediacal Ethics.

Harel, I., Kogut, T., Pinchas, M. & Slovic, P., 2017. Effect of media presentations on willingness to commit to organ donation. Proceedings of the National Academy of Sciences of the United States of America , 114(20), pp. 5159-5164.

Haward, C., 2003. The meanings of organ donation: Muslims of Pakistani origin and white English nationals living in North England. Soc Sci Med, Volume 3.

Hutchings, P., Grey, P., Manchipp, S. & Phelps, C., 2013. Understanding public attitudes towards organ donation: A media analysis, Cardiff: Welsh Government .

Mone, T., 2017. With Renewed Calls for Presumed Consent, Let's Look at the Donation and Transplant Rates of Opt-In vs Opt-Out Countries. Transplantation , 101(11).

Mossialos, E, 2008. Does organ donation legislation affect individuals' willingness to donate their own or their relative's organs?. BMC Health Services, 8(48).

NHS Blood and Transplant 2016, 2016. Organ and Tissue Transplantation for Black, Asian and Minority Ethnic ( BAME) communites. Report for 2015/16, s.l.: s.n.

NHS Blood and Transplant , 2017. Organ Donation and Transplantation: Activity Report: 2016 and 2017, s.l.: s.n.

NHS Blood and Transplant , 2017. Statistics about organ donation. [Online]
Available at: https://www.organdonation.nhs.uk/supporting-my-decision/statistics-about-organ-donation/
[Accessed 17 October 2017].

Oliver, M. & Ahmed, A., 2011. Donating in good faith or getting into trouble: Religion and organ donation revisted. World J Transplant, Volume 2.

Optimisa Research, 2014. BAME organ donation 2014: gaining a deeper understanding of attitudes, cultural and lifestyle influences and behaviours towards organ donation within BAME communities in the UK, s.l.: s.n.

Organ Donation Taskforce, 2008. The potential impact of an opt out system for organ donation in the UK,

Palmer, M. & Jones, I., 2012. Opt-out systems of organ donation: International evidence review, Cardiff: Welsh Governement .

Pelleriaux, B. et al., 2008. An analysis of critical care staff's attitudes to donation in a country with presumed-consent legislation. Prog Transplant.

Randhawa, G. et al., 2010. 'Opting-in or opting-out?'—The views of the UK's faith leaders in relation to organ donation. Health Policy, 96(1), pp. 36- 44.

Rennick, L., 2015. Transplantation (Authorisation of Removal of Organ Etc) (Scotland Bill): SPICe Brefing, s.l.: s.n.

Rithalia, A. et al., 2009. A systematic review of presumed consent systems for deceased organ donation. Health Technology Assessment , 12(26).

Roels, 1991. Three years of experience with a 'presumed consent' legislation in Belgium: its impact on multi-organ donation in comparison with other European countries. The Leuven Collaborative Group for Transplantation.. Transplantation Proceedings , 23(2), pp. 903-904.

Rudge, C. & Buggins, E., 2012. How to Increase Organ Donation: Does Opting Out Have a Role?. Transplantation, 93(2), pp. 141-144.

Sharif, A., Nightingale, P. & Lipkin, J, 2011. A Qualitative Survey of Western Muslim Attitudes to Solid Donation. Transplantation.

Shaw, D. et al., 2017. Family Over Rules? An Ethical Analysis of Allowing Families to Overrule Donation Intentions. Transplantation , 101(3), pp. 482- 487.

Shepherd; O'Carroll and Ferguson, 2014. An international comparison of deceased and living organ donation/transplant rates in opt-in and opt-out systems: a panel study. BMC Medicine, 12(131).

Shepherd, L. & O'Carroll, R., 2014. When do next-of-kin opt-in? Anticipated regret, affective attitudes and donating deceased family member's organs. Journal of Health Psychology, 19(12), pp. 1508-1517.

Shepherd, L., O'Carroll, R. & Ferguson, E., 2014. An international comparison of deceased and living organ donation/transplant rates in opt-in and opt-out systems: a panel study. BMC Medicine, Volume 12.

Smudla, A., Hegedus, K., Mihay, S. & Szabo, G. a. F. J., 2012. The HELLP concept - relatives of deceased donors need the Help Earlier in parallel with Loss of a Loved Person.. Ann Transplant, 17(2).

Sque, M. & Long, T. &. S., 2003. Organ and tissue donation: exploring needs of families. Final report of three-year study commisioned by the British Organ Donor Society, Southampton: University of Southampton.

Sque, M. et al., 2008. The UK postmortem organ retention crisis: a qualitative study of its impact on parents. Journal of the Royal Society of Medicine, 101(2), pp. 71-77.

Sudan, D. et al., 2014. Quality of Life after Pediatric Intestinal Transplantation: The Perception of Pediatric Recipients and Their Parents. American Journal of Transplantation, 4(3), pp. 407- 413.

Symvoulakis, E, 2014. rgan Donation Knowledge and Attitudes among Health Science Students in Greece: Emerging Interprofessional Needs.. International journal of medical sciences, Volume 10.

The Welsh Government, 2012. Opt-out systems of organ donation: International evidence review,

The Welsh Government, 2012. The role of families in organ donation: International evidence review

The Welsh Government, 2017. Evaluation of the Human Transplantation (Wales) Act: Impact Evaluation Report

Thomas, S., Milnes, S. & Komesaroff, P., 2009. Understanding organ donation in the collaborative era: a qualitative study of staff and family experiences. Internal Medicine Journal , Volume 39, pp. 588- 594.

Ugar, Z., 2015. Does presumed consent save lives? Evidence from Europe. Health Economics, Volume 12, pp. 1560 - 72.

Walker, W., Broderick, A. & Sque, M., 2013. Factors Influencing Bereaved Families' Decisions About Organ Donation: An integrative literature review. Western journal of nursing research , 35(10), pp. 1339- 1359.

Willis, B. a. Q. M., 2014. Opt-out organ donation: on evidence and public policy. 107(2).

Wright, L., 2007. Is presumed consent the answer to organ shortages? No. British Medical Journal , 334(7603).

Contact

Back to top