1. TNS Organ Donation 2016 Campaign Evaluation (September 2016, unpublished)
2. A backlog of registration activity made via GP Services is not accounted for
3. The survey asked "How much do you agree or disagree that everyone should be presumed to be willing to be an organ donor unless they register a wish otherwise" - 59% agreed with this. It was carried out by TNS but has not been published.
4. Legislation refers solely to the change in law and presumption that those who do not declare their wishes are deemed to want to donate. The term system is not particularly well defined in the literature, but in this context it refers to the legislation change and the wider media and awareness raising campaigns and staff training that often occur concurrently with the legislation change.
5. As well as more likely to be disproportionately White
6. Scotland and Wales are both devolved nations in the UK, which are part of a wider UK system of organ donation and are culturally similar.
7. The use of the term family has been used for simplicity and is referred to in its broadest sense. This includes non-blood relatives and extends to the 'nearest and dearest'.
8. This is referring to the 1992 introduction of opt out legislation
9. TNS Organ Donation 2016 Campaign Evaluation (September 2016, unpublished)
10. An organ donation register where you can both opt in and out
11. An organ donation register where you can only opt in or opt out but are unable to do both.
12. An Equalities Impact Assessment was conducted by Scottish Government with regards to how to mitigate these barriers for religious and ethnic groups.