Publication - Research publication

The microsegmentation of the autism spectrum: research project

Published: 26 Mar 2018

Economic research on autism and implications for Scotland, including how the economic cost of autism can inform strategy and planning.

357 page PDF

4.7 MB

357 page PDF

4.7 MB

Contents
The microsegmentation of the autism spectrum: research project
Contents By Subheading

357 page PDF

4.7 MB

Contents By Subheading

1 Executive Summary
Introduction
Preliminary Scoping Exercise
Prevalence
Intellectual ability and disability
Prevalence and intellectual ability: the Scottish context
The Scottish Autism Survey
The economic impact of autism in Scotland
Segmenting the autism spectrum
Recommendations

2 Introduction

3 Scoping Exercise

4 Study 1: The Prevalence Of Autism Spectrum Disorders
Introduction
Method
Results
Discussion

5 Intellectual Ability And Disability Across The Spectrum
Method
Results
Discussion

6 Prevalence And Intellectual Ability: The Scottish Context

7 The Scottish Autism Survey
Method
Sample recruitment
Statistical analysis
Treatment of missing data
Qualitative analysis
Analysis of ASD Diagnostic Categories
Results
Respondent Characteristics
Demographic Characteristics of the ASD sample
ASD Diagnoses
Intellectual Disability
Other diagnoses
Education
Educational Transitions
Further Education
Qualifications
Employment
Predictors of Employment
Relationships
Predictors of Relationship Status
Residential Status
Predictors of independent residential status
Independent Living
Service Use
Parental and familial impact of ASD
Predictors of Parental Impact
Summary of Findings from Statistical Modelling Analyses
Discussion
Limitation to the modelling analyses
Future Research
Analysis of Free-Text Comments
Comments from individuals with ASD
Comments from parents/carers
Discussion
Limitations to the thematic analyses
Comments on autism and sex (male/female) and on ID

8 The Economic Impact Of Autism Spectrum Disorders In Scotland
The cost of autism
Methods
Unit costs
Statistical analysis
Lifetime cost
National cost
Cost variation
Scope of the cost variations analyses
Results
Service use and cost: children
Service use and costs: adults
Service use and costs: carers
Lifetime cost
National costs
Cost variation
Cost variation: children
Cost variation: adults
Discussion

9 Segmenting The Autism Spectrum

10 The Escapable Costs Of Autism: Microsegmentation And Future Research And Provision For ASD In Scotland
Quality of life
Autism: the inescapable costs
Autism and evidence-based interventions
Making an economic case for interventions

References

Appendices

Appendix A.1 Papers removed at Stage 4 of prevalence study (57 papers)

Appendix A.2 Stage 5 Data extraction and coding: ASD prevalence data extraction form and guidelines for scoring

Appendix A.3 Papers removed at Stage 5 of prevalence study (27 papers) and final set included

Appendix B.1 Papers removed at Stages 3 and 4 of IQ study and final set included

Appendix B.2 Stage 4 Data extraction and coding: ASD IQ extraction form and guidelines for scoring

Appendix C.1 Duplicate response analysis

Appendix C.2 Co-occurring diagnoses supplementary statistics

Appendix C.3 School placement alternative statistics

Appendix C.4 Highest level of educational support alternative statistics

Appendix C.5 Highest level of educational support logistic regression analysis supplementary statistics

Appendix C.6 Employment Logistic Regression Analysis alternative statistics

Appendix C.7 Relationship status logistic regression analysis alternative statistics

Appendix C.8 Residential status logistic regression analysis alternative statistics

Appendix C.9 Service use alternative statistics

Appendix C.10 Family impact linear regression analysis alternative statistics

Appendix C.11 Thematic Analyses

Chapter D.1 Average annual service use and cost for children with ASD

Chapter D.2 Average annual service use and cost for adults with ASD 296

Chapter D.3 Average annual service use and cost for carers of people with ASD

Chapter D.4 Average annual service costs per capita for people with ASD and their carers 310

Chapter D.5 National annual costs for individuals with ASD diagnosis and their carers

Chapter D.6 Predictors of service use and cost for children with ASD

Chapter D.7 Predictors of service use and cost for adults with ASD

ANNEX: The Scottish Autism Survey


Contact