Collaborative and Compassionate Cancer Care: cancer strategy for children and young people 2021–2026

This Managed Service Network (MSN) for Children and Young People with cancer (CYPC) strategy celebrates the achievements to date as well as setting out ambitions for the coming 5 years.


1. Young Lives vs Cancer Social Workers

2. Children's Hospices Across Scotland

3. In addition there is a fortnightly UK National Leukaemia MDT

4. TYAs treated in the adult sector are discussed at tumour site specific local, regional and national MDTs

5. Psychosocial focused MDT

6. Cancer is defined as: ICD-10 C00-C96 (C97 is not used by the Scottish Cancer Registry), D32-D33, D35.2-D35.4, D42-D43, D44.3-D44.5. All malignant neoplasms including non-melanoma skin cancer: ICD-10 C00-C96 (C97 is not used by the Scottish Cancer Registry). Benign and uncertain behaviour tumours of the brain and central nervous system (CNS): ICD-10 D32-D33, D35.2-D35.4, D42-D43, D44.3-D44.5

7. Cancers in Children are classified according to ICCC diagnostic groupings as based on the Steliarova-Foucher methodology (ICCC Third Edition)

8. Cancers in Young People are classified according to Birch-Alston diagnostic groupings

9. Observed (crude) survival is the overall survival based on deaths from all causes and is calculated using Kaplan-Meier (K-M) method, which does not take into account competing risks

10. Separate information is not shown for 'Other and unspecified malignant tumours'

11. Only cancers that are the first malignant tumour for a patient in a diagnostic grouping are selected for survival analysis

12. Survival is censored at 31 December 2018. Therefore, cases diagnosed in 2014-2017 do not have a full 5 years' follow-up

13. Survival probabilities are not calculated where there are fewer than 10 cases

14. 95% confidence intervals (CIs) are calculated using the method detailed in Hosmer and Lemeshow (Applied Survival Analysis, 1999, Wiley). This method is based on a transformation of intervals for the log-minus-log (LML) survival function, or log cumulative hazard function. This method works well in small samples

15. Separate information is not shown for 'Miscellaneous Specified and Unspecified Neoplasms Not Elsewhere Classified'

16. Scottish Government, 'Realistic Medicine'

17. Scottish Government, 'Getting it Right for Every Child'

18. Children's Cancer and Leukaemia Group

19. Healthcare Improvement Scotland

20. Whole Time Equivalent (WTE) – anyone who works a minimum of 37.5 hours per week counts as 1.0WTE

21. PanCare EU – Pan-European Network for Care of Survivors After Childhood and Adolescent Cancer

22. Paediatric End of Life Care Network (PELiCAN)

23. Headsmart

24. Maggie's

25. Children's Hospices Across Scotland

26. Teenage Cancer Trust

27. Young Lives vs Cancer

28. Macmillan Cancer Support

29. PAs - Programmed activities or hours treated as whole time (10PAs per week = 40 hours

30. Post vacant since February 2020, cover provided by the MSN CYPC Network Support Officer

31. TCT adopted post

32. TCT fund additional 2.0WTE Youth Support Co-ordinators, working within the paediatric hospitals. These posts work with children and young people beyond 16 years. These are not TYA specific, therefore have not been included within the above data

33. Macmillan Cancer Support pump primed



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