Shared decision making in realistic medicine: what works

Synthesis of recent evidence on the current use of shared decision-making in Scotland, and international evidence of what works in encouraging greater use of shared decision-making in clinical consultations.

6. Bibliography

Bastiaens, H. et al., 2007. Older people's preferences for involvement in their own care: a qualitative study in primary health care in 11 European countries. Patient Education Counseling, Volume 68, pp. 33-42.

Beaver, K. et al., 2005. Exploring the decision-making preferences of people with colorectal cancer. Health Expectations, Volume 8, pp. 103-113.

Belcher, V., Fried, T., Agostini, J. & Tinetto, M., 2006. Views of Older Adults on Patient Participation in Medication-related Decision Making. Journal of General International Medicine, 21(4), pp. 298-303.

Bhatt, J. et al., 2018. The nature of decision-making in people living with dementia: a systematic review. Aging and Mental Health.

Butow, P. et al., 1995. Computer-based interaction analysis of the cancer consultation. British Journal of Cancer, 71(5), p. 1115.

Carter, P. & Martin, G., 2018. Engagement of patients and the public in NHS sustainability and transformation: An ethnographic study. Critical Social Policy, 38(4), pp. 707-727.

Clayman, M. & Morris, M., 2013. Patients in context: recognizing the companion as part of a patient-centred team. Patient Education Counselling, Volume 91, pp. 1-2.

Couet, N. et al., 2013. Assessments of the extent to which health-care providers involve patients in decision making: a systematic review of studies using the OPTION instrument. Health Expectations.

Coulter, A., 2006. Engaging patients in their healthcare. How is the UK doing relative to other countries?, Oxford: Picker Institute Europe.

Coulter, A. & Collins, A., 2011. Making shared decision-making a reality. No decision about me, without me, s.l.: Kings Fund.

Coulter, A., Edwards, A., Elwyn, G. & Thomson, R., 2011. Implementing shared decision making in the UK. Z. Evid. Fortbild. Qual. Gesundh. wesen (ZEFQ), Volume 105, pp. 300-304.

Coulter, A., Roberts, S. & Dixon, A., 2013. Delivering better services for people with long-term conditions: Building the house of care, s.l.: The Kings Fund.

Currie, M., Philip, L. & Roberts, A., 2015. Attitudes towards the use and acceptance of eHealth technologies: a case study of older adults living with chronic pain and implications for rural healthcare. BMC Health Services Research, Volume 15, p. 162.

Dowds, G., Philip, L., Currie, M. & Masthoff, J., 2018. A window to the outside world: Digital technology to stimulate imaginative mobility for rural housebound older adults. In: A. Curl & C. Musselwhite, eds. Geographies of Transport and Ageing. s.l.:Palgrave Macmillan, pp. 101-130.

Edwards, A. et al., 2004. Patient-based outcome results from a cluster randomized trial of shared decision making skill development and use of risk communication aids in general practice. Family Practice, Volume 2, p. 347.

Elwyn, G. & Buckman, L., 2015. Should doctors encourage patients to record consultations?. British Medical Journal, Volume 350, p. g7645.

Elwyn, G. et al., 2017. A three-talk model for shared decision making: multistage decision making. British Medical Journal, 359(j4891), pp. 1-7.

Elwyn, G., Frosch, D. & Kobrin, S., 2016. Implementing shared decision-making: consider all the consequences. Implementation Science, Volume 11, p. 114.

Elwyn, G. et al., 2013. Are we there yet? Case studies of the implementing patient decision support, Hanover, New Hapshire: The Dartmouth Center for Health Care Delviery Science and The Dartmouth Institute for Healthcare Policy and Clinical Practice.

Elwyn, G. et al., 2013. "Many miles to go...": a systematic review of the implementation of patient decision support interventions into routine clincial practice. British Medical Information Decision Making, 13(Suppl 2), p. S14.

Farmer, J., Munoz, S.-A., Steinerowski, A. & Bradley, S., 2011. Health, Wellbeing and Community Involvement of Older People in Rural Scotland. In: Health and Well-Being: A Social and Cultural Perspective. s.l.:Nova Science Publishers, Inc, pp. 127-142.

Fisher, K. et al., 2018. Keeping the patient in the center: common challenges in the practice of shared decision making. Patient Education and Counseling, 101(12), pp. 2195-2201.

Forcino, R. et al., 2018. US-based cross-sectional survey of clinicians' knowledge and attitudes about shared decision-making across healthcare professions and specialities. British Medical Journal, 8(10), p. e022730.

Fraenkel, L. & McGraw, S., 2007. What are the essential elements to enable patient participation in medical decision making. Journal of General International Medicine, Volume 22, pp. 614-9.

Freeman, G. & Hughes, J., 2010. Continuity of care and the patient experience, s.l.: The Kings Fund.

Frerichs, W. et al., 2016. Shared Decision-Making in Oncology - A qualitative analysis of Healthcare Provider's views on current practice. PLOS ONE, 11(3), p. e0149789.

Gawande, A., 2014. Being Mortal: Medicine and What Matters in the End. s.l.:Macmillan USA.

Gravel, K., Legare, F. & Graham, I., 2006. Barriers and facilitators to implementing shared decision-making in clinical practice: a systematic review of health professionals' perceptions. Implementation Science, Volume 1, p. 16.

Gulbrandsen, P., Clayman, M., Beach, M. & Hane, P., 2016. Shared decision-making as an existential journey: Aiming for restored autonomous capacity. Patient Education and Counseling, Issue 99, pp. 1505-1510.

Hack, T., Degner, L., Watson, P. & Sinha, L., 2006. Do patients benefit from participating in medical decision making? Longitudinal follow-up of women with breast cancer. Pyscho-oncology, Volume 15, pp. 9-19.

Halpern, J., 2018. Creating the Safety and Respect for "Shared" Decision-Making. Pediatrics, Volume 142, pp. 163-169.

Hibbard, J. & Greene, J., 2013. What the evidence shows about patient activation: better health outcomes and care experiences: fewer data on costs. Health Affairs, Volume 32, pp. 207-214.

Jacobsen, J., Blinderman, C., Core, C. & Jackson, V., 2018. "I'd Recommend." How to incorporate our recommendation into Shared Decision Making for patients with serious illness. Journal of Pain and Symptom Management, Volume 55.

Joseph-Williams, N., Elwyn, G. & Edwards, A., 2014. Knowledge is not power for patients: A systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Education and Counseling, 94(3), pp. 291-309.

Joseph-Williams, N. et al., 2017. Implementing shared decision making in the NHS: lessons from the MAGIC programme. British Medicial Journal, 357(1744), pp. 1-6.

Kessels, R., 2003. Patients' memory for medical information. Journal of Royal Society of Medicine, 96(5), pp. 219-222.

Layzell, B., Manning, B. & Benton, S., 2009. The elderly demographic time bomb - Sharing the load with active ageing: Can ehealth technologies help diffuse it?. Studies in Health Technology and Informatics, Volume 46, pp. 166-170.

Lee, C. et al., 2010. Development of instruments to measure the quality of breast canacer treatment decisions. Health Expectations, 13(3), pp. 258-272.

Légaré, F. et al., 2018. Interventions for increasing the use of shared decision making by healthcare professionals (Review): The Cochrane, s.l.: Cochrane Database for Systematic Reviews.

Legare, F., Ratte, S., Gravel, K. & Graham, I., 2008. Barriers and facilitators to implementing shared decision-making in clincial practice: update of a systematic review of health professionals' perceptions. Patient Education Counseling, Volume 73, pp. 526-535.

Legare, F. et al., 2011. Prenatal screening for down syndrome: a survey of willingness in women and family physicians to engage in shared decision-making. Prenatal Diagnosis, Volume 31, pp. 319-326.

Legare, F. & Thompson-Leduc, P., 2014. Twelve myths about shared decision making. Patient Education and Counseling, Issue 96, pp. 281-286.

Leppin, A. et al., 2014. Was a decision made? An assessment of patient-clinician discordance in medical oncology encounters. Health Expectations, Volume 18, p. 3374-3381.

Lhussier, M. et al., 2013. Care planning for long-term conditions. Health Expectations, Volume 18, pp. 605-624.

Lloyd, A. et al., 2013. Patchy 'coherence': using normalization process theory to evaluate a multi-faceted shared decision making implementation program (MAGIC). Implementation Science, Volume 8, p. 102.

Makoul, G. & Clayman, M., 2006. An integrative model of shared decision making in medical encounters. Patient Education and Counseling, Issue 60, pp. 301-312.

Miller, L., Whitlatch, C. & Lyons, K., 2016. Shared decision-making in dementia: A review of patient and family carer involvement. Dementia, 15(5), pp. 1141-1157.

Montori, V., 2007. Creating a conversation: insights from the development of a deicison aid. PLoS Medicine, Volume 4, p. e233.

Moumjid, N., Gafni, A., Bremond, A. & Carrere, M., 2007. Shared decision making in the medical encounter: are we all talking about the same thing?. Medical Decision Making, pp. 539-546.

Mulley, A., Trimble, C. & Elwyn, G., 2012. Patients' Preferences Matter: Stop the silent misdiagnosis, London: The Kings Fund.

Munoz, S., 2013. Co-Producing Care Services in Rural Areas. Journal of Integrated Care, 21(5), pp. 276-287.

Munoz, S., Farmer, J., Warburton, J. & Hall, J., 2014. Involving rural older people in service co-productions: is there an untapped pool of potential participants?. Journal of Rural Studies, Volume 34, p. 212.

Park, E. & Song, M., 2005. Communication barriers perceived by older patients and nurses. International Journal of Nursing Studies, Volume 42, pp. 159-66.

Roberts, A., Nimegeer, A., Farmer, J. & Heaney, D., 2015. The experience of community first responders in co-producing rural health care: in the liminal gap between citizen and professional. BMC Health Services Research, 14(460), pp. 1-10.

Shafir, A. & Rosenthal, J., 2012. Shared Decision Making: Advancing Patient-Centered Care through State and Federal Implementation, s.l.: National Academy for State Health Policy.

Shay, L. & Lafata, J., 2015. Where is the evidence? A systematic review of shared decision making and patient outcomes. Medical Decision Making, 35(1), pp. 114-131.

Stacey, D. et al., 2014. Decision aids for people facing health treatment or screening decisions, s.l.: Cochrane Systematic Review.

Stiggelbout, A., Pietersea, A. & De Haesb, J., 2015. Shared decision making: Concepts, evidence, and practice. Patient Education and Counseling, Volume 98, pp. 1172-1179.

Tsulukidze, M., Durand, M.-A., Barr, P. & Mead, T., 2014. Providing recording of clinical consultation to patients - A highly valued but underutilized intervention: A scoping review. Patient Education and Counseling, 95(3).

Walach, H. & Loughlin, M., 2018. Patients and agents - or why we need a different narrative: a philosophical analysis. Philosophy, Ethics, and Humanities in Medicine, 13(13), pp. 1-8.

Wyatt, K. et al., 2014. Peering into the black box: a meta-analysis of how clincians use decision aids during clinical encounters. Implementation Science, 9(26).

Zeuner, R., Frosch, L., Kuzemchak, M. & Politi, M., 2014. Physicians' perceptions of shared decision-making behaviours: a qualitative study demonstrating the continued chasm between aspirations and clinical practice. Health Expectations, Issue 18, p. 2465-2476.



Back to top