2. RDUK - a voluntary sector group representing people with rare diseases and their supporters - www.raredisease.org.uk
7. Source Eurostat - http://epp.eurostat.ec.europa.eu
13. Tebbit, National Council for Palliative Care. 1999.
14. Living and Dying Well (2008)
32. Commitment 24 of the Strategy - www.scotland.gov.uk/Resource/0043/00438631.pdf
35. J Neurol Neurosurg Psychiatry. 2012 Jul;83(7):719-24. doi:10.1136/jnnp-2011-301546. Epub 2012 May 10
36. Trials that do not involve an Investigational Medicinal Product (IMP) as defined by the MHRA, and therefore do not fall within the scope of the Medicines for Human Use (Clinical Trials) Regulations 2004.
Email: Paul Currie