Human Tissue (Authorisation) (Scotland) Bill: BRIA

Footnotes

1. https://nhsbtdbe.blob.core.windows.net/umbraco-assets/1068/scotland.pdf

2. Taking Organ Transplantation to 2020 – A UK Strategy notes that over half a million people die each year in the UK, but fewer than 5000 people each year die in circumstances or from conditions where they could become donors.

3. https://nhsbtdbe.blob.core.windows.net/umbraco-assets/1616/united_kingdom.pdf

4. For example, in a survey of 1032 people in Scotland in August 2016 carried out by TNS, 70% of people agreed that ' we should all register to be organ donors'.

5. Data provided by NHSBT

6. http://www.gov.scot/Resource/0042/00427357.pdf

7. Welsh Government, "Opt out organ donation: An international review," Welsh Government, 2012.

8. Bilgel, F, "The impact of presumed consent laws and institutions on deceased organ donation," European Journal of Health Economics, vol. 13, pp. 29 - 38, 2010.

9. Welsh Government, "Opt out organ donation: An international review," Welsh Government, 2012.

10. Welsh Government, "Opt out organ donation: An international review," Welsh Government, 2012.

11. Abadie, A, Gay, S, "The impact of presumed consent legislation on cadaveric organ donation: A cross country study," in NBER , 2004.

12. Bilgel, F, "The effectiveness of transplant legislation, procedures and management," Health Policy, vol. 110, pp. 229 - 242, 2013.

13. Abadie, A, Gay, S, "The impact of presumed consent legislation on cadaveric organ donation: A cross country study," in NBER, 2004.

14. Palmer, M. & Jones, I., 2012. Opt-out systems of organ donation: International evidence review, Cardiff: Welsh Government

15. Rithalia, A. et al., 2009. A systematic review of presumed consent systems for deceased organ donation. Health Technology Assessment , 12(26).

16. Rithalia, A. et al., 2009. A systematic review of presumed consent systems for deceased organ donation. Health Technology Assessment, 12(26).

17. Davidai, S. Gilovich T. Ross, L, "The meaning of default options for potential organ donors," PNAS, vol. 109, no. 38, pp. 15201-15205, 2012.

18. Dalen, H and Henkens, K, "Comparing the effects of defaults in organ donation systems," Social Science & Medicine, vol. 106, pp. 137 - 142, 2014.

19. Welsh Government, "Opt out organ donation: An international review," Welsh Government, 2012

20. Bilgel, F, "The impact of presumed consent laws and institutions on deceased organ donation," European Journal of Health Economics, vol. 13, pp. 29 - 38, 2010.

21. Dominguez, J and Rojas, J, "Presumed Consent Legislation Failed to Improve Organ Donation in Chile," Transplantation Proceedings, vol. 45, pp. 1316 - 1317, 2013.

22. World Health Organization, "Increasing organ donation by presumed consent and allocation priority: Chile," Bulletin of the World Health Organization, vol. 93, pp. 199 - 202, 2015.

23. Csillag, C, " Brazil abolishes "presumed consent" in organ donation." Lancet, pp. 352-1367, 1998.

24. The Welsh Government. Evaluation of the Human Transplantation (Wales) Act: Impact Evaluation Report. 2017.

25. Randhwa, G, Brocklehurst, A, Pateman R, Kinsella S and Parry V, "'Opting-in or opting-out?'—The views of the UK's faith leaders in relation to organ donation," Health Policy, vol. 96, pp. 36 - 44, 2010.

26. Sharif, A; Jawad, H; Nightingale, P; Hodson, J; Lipkin, G; Cockwell, P; Ball, S; and Borrows, R (2011) 'A quantitative survey of Western Muslim attitudes to solid organ donation', Transplantation Vol 92:10

27. As per Treasury Green Book Guidance

28. Following Department of Health guidance

29. See http://www.nsd.scot.nhs.uk/publications/Servicereviews/CTT2020%20final%20report.pdf

30. as per Treasury Green book guidance

31. Quality Adjusted Life Years - A measure of the state of health of a person or group in which the benefits, in terms of length of life, are adjusted to reflect the quality of life. One QALY is equal to 1 year of life in perfect health.

32. Slapak, M. (2005). Sport and transplantation. Annals of Transplantation. 10(1), 62. As cited in "Commissioning Transplantation to 2020", Subgroup of the National Specialist Services Committee, Final Report, National Services Division