A Framework for the Delivery of Palliative Care for Children and Young People in Scotland

The Framework sets out a safe, effective and person centred approach to palliative care for children and young people. It is supported by guidance for services and provides a self assessment tool.


Appendix 4 Mortality Statistics (ISD)

Death Statistics: Source: Death data from General Register Office for Scotland (GROS)

All Deaths from LLI including Cancer for Scotland as a whole
using Hain ICD10 codes/age group
Age Group Year
Place of Death 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009
Home/Private Address Under 28 days 2 - 1 1 - 1 2 - 2 1
28 days and over and less than 1 year 4 4 3 2 3 1 2 2 1 2
1-4 years 7 5 4 6 8 6 4 8 - 1
5-9 years 8 9 1 7 5 8 3 2 4 3
10-14 years 9 4 8 7 6 9 5 6 8 3
15-19 years 7 7 6 7 7 6 11 2 12 10
Hospice Under 28 days - - - 1 - - 1 - 2 -
28 days and over and less than 1 year 1 - - - 1 1 2 2 1 1
1-4 years 1 2 - - - 1 2 1 1 5
5-9 years 3 1 - - 2 - 2 1 2 2
10-14 years 2 3 1 - - 3 - - 2 2
15-19 years - - 1 1 2 3 - 2 6 2
NHS Hospital Under 28 days 66 45 46 34 48 52 39 50 51 44
28 days and over and less than 1 year 21 15 20 9 23 17 17 10 19 12
1-4 years 8 6 18 20 16 15 8 11 8 7
5-9 years 3 6 7 7 6 3 8 3 7 4
10-14 years 2 11 8 8 11 10 10 8 3 4
15-19 years 17 11 13 20 12 13 18 14 11 8
Other Institution/ Care Home Service Under 28 days - - - - - - - - - -
28 days and over and less than 1 year - - 1 - - - - - - -
1-4 years - - - - - - - - - -
5-9 years - - - - - - - - - -
10-14 years - - - - - 1 - - - -
15-19 years - - - - - - - - - -
161 129 138 130 150 150 134 122 140 111

'-' = zero value.

Source: Death data from General Register Office for Scotland (GROS); data from ISD SMR01 (hospital inpatient and day case) records were used to obtain further details of place of death.

Total Number of Deaths using Hain ICD10 codes/age group Year
2000 2001 2002 2003 2004 2005 2006 2007 2008 2009
Under 28 days 68 45 47 36 48 53 42 50 55 45
28 days and over and less than 1 year 26 19 24 11 27 19 21 14 21 15
1-4 years 16 13 22 26 24 22 14 20 9 13
5-9 years 14 16 8 14 13 11 13 6 13 9
10-14 years 13 18 17 15 17 23 15 14 13 9
15-19 years 24 18 20 28 21 22 29 18 29 20
Total across all age groups 161 129 138 130 150 150 134 122 140 111

Source: Death data from General Register Office for Scotland (GROS); data from ISD SMR01 (hospital inpatient and day case) records were used to obtain further details of place of death.

Cancer Deaths using Hain ICD10 codes/age group Age Group Year
Place of Death 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009
Home/Private Address Under 28 days - - - 1 - - - - - -
28 days and over and less than 1 year - 1 2 - 2 1 - - - -
1-4 years 5 4 4 2 6 1 2 7 - -
5-9 years 5 8 1 4 5 7 3 2 4 3
10-14 years 7 3 7 8 5 3 5 6 6 2
15-19 years 4 6 3 3 2 4 5 2 7 8
Hospice Under 28 days - - - - - - - - - -
28 days and over and less than 1 year - - - - - - - 1 - -
1-4 years - 1 - - - - - - - 3
5-9 years 1 - - - - - - - - 2
10-14 years 1 1 - - - 2 - - 1 1
15-19 years - - 2 - 1 2 - 2 3 2
NHS Hospital Under 28 days 4 - 1 2 1 - 3 - - 1
28 days and over and less than 1 year - 1 - - 3 2 4 1 - 2
1-4 years 3 1 9 9 5 5 4 4 2 2
5-9 years 1 3 2 5 4 - 4 3 3 3
10-14 years - 5 5 2 10 7 6 4 3 4
15-19 years 9 5 8 10 8 3 10 7 4 3
40 39 44 46 52 37 46 39 33 36
Deaths from LLI excluding Cancer using Hain ICD10 codes/age group Age Group Year
Place of Death 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009
Home/Private Address 10-14 years 3 1 1 3 1 6 0 3 2 1
1-4 years 2 1 0 4 2 5 2 1 0 1
15-19 years 3 2 3 4 6 2 6 1 5 2
28 days and over and less than 1 year 4 3 1 2 1 0 2 2 1 2
5-9 years 3 3 1 3 1 1 0 0 0 0
Under 28 days 2 0 1 1 0 1 2 0 2 1
Hospice 10-14 years 1 2 1 0 0 1 0 0 1 1
1-4 years 1 1 0 0 0 1 2 1 1 2
15-19 years 0 0 0 1 1 2 0 0 3 0
28 days and over and less than 1 year 1 0 0 0 1 1 2 1 1 1
5-9 years 2 1 0 0 2 0 2 1 2 1
Under 28 days 0 0 0 1 0 0 1 0 2 0
NHS Hospital 10-14 years 2 6 3 6 1 3 4 4 0 1
1-4 years 6 5 9 11 11 10 4 8 6 5
15-19 years 8 8 5 12 7 11 10 7 8 5
28 days and over and less than 1 year 21 14 20 9 20 15 14 9 19 11
5-9 years 2 3 5 2 2 3 4 1 4 1
Under 28 days 63 45 45 33 48 52 36 50 51 43
124 95 96 92 104 115 91 89 108 78

 

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