Publication - Advice and guidance

A Framework for the Delivery of Palliative Care for Children and Young People in Scotland

Published: 20 Nov 2012
Part of:
Health and social care

The Framework sets out a safe, effective and person centred approach to palliative care for children and young people. It is supported by guidance for services and provides a self assessment tool.

A Framework for the Delivery of Palliative Care for Children and Young People in Scotland
Appendix 2 References

Appendix 2 References


2. (2008) "Living and Dying Well: An Action Plan for palliative and end of life care in Scotland" September 2009, Scottish Government, Edinburgh. RR Donnelley B57735 09/08.

3. Living and Dying Well working group 6: Recommendation 8.

4. (2011) " Living and Dying Well: Building on Progress" January 2011, Scottish Government, Edinburgh. ISBN: 978-0-7559-9860-9 (web Only)

5. Paediatric Resuscitation Policy

6. (2011) ibid, para 63, p32

7. (2011) ibid, Action 18, p32

8. ACT (2009 third edition) "Guide to the Development of Children's Palliative Care Services" - ACT is a UK-wide organisation.

9. Defining children who may have palliative care needs: A Delphi consensus building study Lynda Brook, Chris Kerr and Sheila Hawker Sept 2010

10. A Framework for the development of an Integrated Care Pathway for Children and Young People with Life-Threatening or Life-Limiting Conditions and their Families (ACT 2007 first published 2004) ISBN 1 898447 07 1.

11. MCN for children with exception health care needs:

12. Children's Hospice Association of Scotland Plan 2011-2016

13. Health Quality Strategy

14. Health Improvement Scotland Quality indicators for palliative Care

15. Human Tissue (Scotland) Act 2006

16. Development and utility of a 'Dictionary' to establish definition, incidence and prevalence of life limiting conditions in children. Dr R Hain, Dr M Devins, Prof R Hastings, Dr V Totsika (personal communication)

17. The Transition Care Pathway ( ACT 2007) ISBN 1 898447 08 x

18. Think Transition. Royal College of Physicians of Edinburgh (2008)


Email: Fiona McKinlay