Publication - Advice and guidance

A Framework for the Delivery of Palliative Care for Children and Young People in Scotland

Published: 20 Nov 2012
Part of:
Health and social care
ISBN:
9781782561651

The Framework sets out a safe, effective and person centred approach to palliative care for children and young people. It is supported by guidance for services and provides a self assessment tool.

A Framework for the Delivery of Palliative Care for Children and Young People in Scotland
Appendix 2 References

Appendix 2 References

1. http://www.scotland.gov.uk/Topics/People/Young-People/gettingitright/background

2. (2008) "Living and Dying Well: An Action Plan for palliative and end of life care in Scotland" September 2009, Scottish Government, Edinburgh. RR Donnelley B57735 09/08. http://www.scotland.gov.uk/Topics/Health/NHS-Scotland/LivingandDyingWell

3. Living and Dying Well working group 6: Recommendation 8.

4. (2011) " Living and Dying Well: Building on Progress" January 2011, Scottish Government, Edinburgh. ISBN: 978-0-7559-9860-9 (web Only) http://www.scotland.gov.uk/Topics/Health/NHS-Scotland/LivingandDyingWell/buildingonsuccess

5. Paediatric Resuscitation Policy http://www.scotland.gov.uk/Topics/Health/NHS-Scotland/LivingandDyingWell/CYPADM/CYPADMPolicydocument

6. (2011) ibid, para 63, p32

7. (2011) ibid, Action 18, p32

8. ACT (2009 third edition) "Guide to the Development of Children's Palliative Care Services" - ACT is a UK-wide organisation. http://www.togetherforshortlives.org.uk/

9. Defining children who may have palliative care needs: A Delphi consensus building study Lynda Brook, Chris Kerr and Sheila Hawker Sept 2010

10. A Framework for the development of an Integrated Care Pathway for Children and Young People with Life-Threatening or Life-Limiting Conditions and their Families (ACT 2007 first published 2004) ISBN 1 898447 07 1. http://www.togetherforshortlives.org.uk/

11. MCN for children with exception health care needs: http://www.cen.scot.nhs.uk/

12. Children's Hospice Association of Scotland Plan 2011-2016

13. Health Quality Strategy http://www.scotland.gov.uk/Topics/Health/NHS-Scotland/NHSQuality

14. Health Improvement Scotland Quality indicators for palliative Care http://www.healthcareimprovementscotland.org/programmes/long_term_conditions.aspx

15. Human Tissue (Scotland) Act 2006 http://www.legislation.gov.uk/asp/2006/4/pdfs/asp_20060004_en.pdf

16. Development and utility of a 'Dictionary' to establish definition, incidence and prevalence of life limiting conditions in children. Dr R Hain, Dr M Devins, Prof R Hastings, Dr V Totsika (personal communication)

17. The Transition Care Pathway ( ACT 2007) ISBN 1 898447 08 x

18. Think Transition. Royal College of Physicians of Edinburgh (2008) http://www.rcpe.ac.uk/clinical-standards/documents/transition.pdf


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Email: Fiona McKinlay