Endometriosis: lived experience insight report 2023

Next Steps

Firstly, we want to thank all of those involved in the process for sharing your experiences with us and for providing such honest and thoughtful accounts.

Conducting this research and speaking to the participants has provided an insight into how patients experience services that currently operate, where things are working well and where improvements could be made.

The information gathered will be used to evidence the need for change and continue to build on conversations with people across the healthcare system. We hope to use the data to develop ideas and highlight best practice to ensure that patients have access to the best, most appropriate and consistent endometriosis care across Scotland.

This work has helped to identify key priorities that should be considered for the following year. The key themes found in the report will inform what types of projects are required and the groups that we need to engage with those projects.

The report will also help to inform our response to the NICE Endometriosis Guideline review consultation and any further endometriosis pathway reviews.

We will also engage with our Endometriosis Advisory Group (EAG) on the report to help develop ideas for change to address some of the key improvement ideas highlighted throughout the lived experience conversations.