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Publication - Research and analysis

Endometriosis: lived experience insight report 2023

Published
8 December 2023
Directorate
Chief Operating Officer, NHS Scotland Directorate
Part of
Health and social care
ISBN
9781835214039

Details the findings from a series of endometriosis lived experience interviews. It seeks to raise awareness of endometriosis by providing an insight into experiences of accessing care and support across Scotland and how living with endometriosis can impact a person’s quality of life.

View supporting documents Supporting documents

Footnotes

1. Rogers PA, D'Hooghe TM, Fazleabas A, et al. Priorities for endometriosis research: recommendations from an international consensus workshop. Reprod Sci 2009;16(4) 335-46

2. Zondervan KT, Becker CM, Missmer SA. Endometriosis. N Engl J Med. 2020;382(13):1244-56

3. Simoens S, Dunselman G, Dirksen C, et al. The burden of endometriosis: costs and quality of life of women with endometriosis and treated in referral centres. Hum Reprod 2012;27(5):1292-9

4. 20200214-ebcd-evaluation-summary-report-v10.pdf (ihub.scot), Feb 2020

5. Nugraha B, Gutenbrunner C, Barke A, Karst M, Schiller J, Schäfer P, Falter S, Korwisi B, Rief W. Treede RD; IASP taskforce for the classification of chronic pain. The IASP classification of chronic pain for ICD-11: functioning properties of chronic pain. Pain 2019;160(1):88–94.

6. Boonstra, A.M., Reneman, M.F., Stewart, R.E. et al. Life satisfaction in patients with chronic musculoskeletal pain and its predictors. Qual Life Res 22, 93–101 (2013).

7. Hadi MA, McHugh GA, Closs SJ. Impact of Chronic Pain on Patients' Quality of Life: A Comparative Mixed-Methods Study. J Patient Exp. 2019 Jun;6(2):133-141. doi: 10.1177/2374373518786013. Epub 2018 Jul 5. PMID: 31218259; PMCID: PMC6558939.

Contact

Email: clinical_priorities@gov.scot

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