Endometriosis: lived experience insight report 2023

Details the findings from a series of endometriosis lived experience interviews. It seeks to raise awareness of endometriosis by providing an insight into experiences of accessing care and support across Scotland and how living with endometriosis can impact a person’s quality of life.

Foreword by the Minister for Public Health and Women's Health

I welcome this Endometriosis Lived Experience Insight Report which provides valuable insight into the challenges faced by people living with endometriosis health.

I am pleased that one of the priority actions within the Women's Health Plan is to ensure that everyone with endometriosis receives the best possible care and treatment.

I am aware of the impact that endometriosis can have on a person's life and recognise that more needs to be done to support those with the condition.

That is why this report is so crucial to ensure the Scottish Government continues to create policy that meets the needs of those with endometriosis and those supporting them.

What we have heard from these experiences has shown that throughout Scotland there are examples of exemplary work that really do make a significant positive impact on the wellbeing of the people we care for.

It also highlights that there are opportunities to enhance practices to ensure that people are receiving the right information at the right time and that provides them with consistent and appropriate options suited to their needs.

While some of the findings in this report are challenging, the Scotish Government remains committed to progressing the actions in the Women's Health Plan and delivering services which meet the needs of all of those with endometriosis.

We will continue to engage with those with lived experience as we use the findings from this report to drive forward improvements.

Jenni Minto MSP
Minister for Public Health and Women's Health


Email: clinical_priorities@gov.scot

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