Scottish Cancer Patient Experience Survey 2018: technical report

3

Getting diagnosed

How do you feel about the length of time you had to wait before your first appointment with a hospital doctor?

1

2

3

-

3,752

4

Getting diagnosed

Think about the first time you had a diagnostic test for cancer. Knowing what you know now, did you have all the information you needed about your test beforehand?

1

-

2, 3, 4

5, 6

4,614

5

Getting diagnosed

Were the results of your first diagnostic test explained in a way you could understand?

1

2

3, 4

5, 6

4,864

7

Finding out about your cancer

When you were first told that you had cancer, had you been told you could bring a family member of friend with you?

1

-

2

3, 4, 5

3,901

8

Finding out about your cancer

How do you feel about the way you were told you had cancer?

1

2

3

-

4,912

9

Finding out about your cancer

Did you understand the explanation of what was wrong with you?

1

2

3

4

4,922

10

Finding out about your cancer

When you were told you had cancer, were you given written information about the type of cancer you had?

1

-

2, 3

4, 5

4,122

12

Deciding the best treatment

Before your treatment started, were your treatment options explained to you?

1

2

3

4, 5

4,196

13

Deciding the best treatment

Were you involved in discussions with healthcare professionals about the right treatment options for you? This may have included the option of not treating your cancer.

1

2

3

4, 5

4,729

14

Deciding the best treatment

Were the possible side effects of treatment(s) explained in a way you could understand?

1

2

3

4, 5

4,569

15

Deciding the best treatment

Were you offered practical advice and support in dealing with the side effects of your treatment(s)?

1

2

3

4

4,562

16

Deciding the best treatment

Before you started your treatment(s), were you also told about any side effects of the treatment that could affect you in the future rather than straight away?

1

2

3

4, 5

4,134

17

Deciding the best treatment

Were you involved as much as you wanted to be in decisions about your care and treatment?

1

2

3

4

4,763

20

Operations, Radiotherapy, Chemotherapy

Think about the last time you went into hospital for an operation for your cancer. Knowing what you know now, did you have all the information you needed about your operation beforehand?

1

-

2, 3, 4

5

3,502

21

Operations, Radiotherapy, Chemotherapy

After the operation, did a member of staff explain how it had gone in a way you could understand?

1

2

3

4, 5

3,502

22

Operations, Radiotherapy, Chemotherapy

Were you given clear written information about what you should or should not do after the operation?

1

-

2

3

3,208

25

Operations, Radiotherapy, Chemotherapy

Knowing what you know now, did you have all the information you needed about your radiotherapy treatment beforehand?

1

2

3

4

2,267

27

Operations, Radiotherapy, Chemotherapy

Knowing what you know now, did you have all the information you needed about your chemotherapy treatment beforehand?

1

2

3

4

2,232

29a

Hospital Care

They spent enough time with me

1, 2

3

4, 5

-

4,860

29b

Hospital Care

They listened to me if I had any questions or concerns

1, 2

3

4, 5

-

4,801

29c

Hospital Care

They discussed my condition and treatment with me in a way I could understand

1, 2

3

4, 5

-

4,821

29d

Hospital Care

They gave me the opportunity to involve the people that matter to me

1, 2

3

4, 5

-

4,674

29e

Hospital Care

They helped me to feel in control of my treatment / care

1, 2

3

4, 5

-

4,707

29f

Hospital Care

They talked in front of me as if I wasn’t there

4, 5

3

1, 2

-

4,649

30

Hospital Care

The last time you received hospital treatment for your cancer, did the healthcare professionals caring for you call you by your preferred name?

1

2

3

-

4,870

31

Hospital Care

Were you given enough privacy when discussing your condition or treatment?

1

2

3

-

4,895

32

Hospital Care

Did a healthcare professional tell you who to contact if you were worried about your condition or treatment after you left hospital?

1

-

2

3

4,711

36

Support from Health & Social Services

How easy or difficult has it been for you to contact your Clinical Nurse Specialist?

1, 2

3

4, 5

6

3,365

37

Support from Health & Social Services

When you have had important questions to ask your Clinical Nurse Specialist, how often have you got answers you could understand?

1

2

3

4

3,236

38

Support from Health & Social Services

Do you think your GP Practice did everything they could to support you while you were 

having cancer treatment?

1

2

3

4

3,521

39

Support from Health & Social Services

During your cancer treatment, have you been given enough care and support from health or social services?

1

2

3

4, 5

2,436

40

Support from Health & Social Services

Once your cancer treatment finished were you given enough care and support from health or social services?

1

2

3

4, 5, 6

1,985

41

Other Support

Did healthcare professionals discuss with you or give you information about the impact cancer could have on your day-to-day activities?

1

-

2

3, 4

3,146

42

Other Support

Did healthcare professionals give you information about support or self-help groups for people with cancer?

1

-

2

3, 4

3,144

43

Other Support

Did healthcare professionals give you information about how to get financial help or any benefits you might be entitled to?

1

-

2

3, 4

2,286

44

Other Support

Did healthcare professionals give your family or someone close to you all the information they needed to help care for you at home?

1

2

3

4, 5

2,898

45

Other Support

Do you feel you have been supported emotionally and psychologically by healthcare professionals during your cancer treatment?

1

2

3

4

3,604

46

Other Support

During your cancer treatment, have you been given information or support from third sector organisations?

1

-

2, 3

4, 5

2,618

47

Other Support

Do you feel you have been supported emotionally and psychologically by third sector organisations during your cancer treatment?

1

2

3

4

2,199

48

Other Support

Once your cancer treatment finished were you given information or support from third sector organisations?

1

-

2, 3

4, 5, 6

1,846

52

Overall Experience

Overall, how easy did you find it to travel to appointments relating to your cancer care?

1, 2

3

4, 5

-

4,725

54

Overall Experience

Were you able to bring a family member, friend or someone else to your appointments to support you when you wanted to?

1, 2

3

4, 5

6

4,335

55

Overall Experience

Overall, how would you rate the communication around how long appointments relating to your cancer care would take?

1, 2

3

4, 5

6

4,716

56

Overall Experience

Overall, do you feel that you have been treated with dignity and respect by the healthcare professionals treating you for cancer?

1, 2

3

4

-

4,796

57

Overall Experience

Overall, how would you rate the administration of your care, for example getting letters at the right time, doctors having the right notes / test results, etc.?

1, 2

3

4, 5

6

4,786

58

Overall Experience

Did the different people treating and caring for you work well together to give you the best possible care?

1, 2

3

4

5

4,672

59

Overall Experience

Overall, how would you rate your care?

7, 8, 9, 10

4, 5, 6

0, 1, 2, 3

-

4,734