Appendix 1: QPI Development Process
Preparatory Work and Scoping
The preparatory work involved the development of a structured briefing paper by Healthcare Improvement Scotland. This paper took account of existing, high quality, clinical guidance and provided a basis for the development of QPIs.
The scope for development of Lymphoma QPIs and a search narrative were defined and agreed by the Lymphoma QPI Development Group. The table below shows the final search criteria used in the literature search.
Table 1 - Lymphoma Search Criteria
Topics ( population/patient):
Follow up management of disease
Date: 2005 to present day
Topics: prevention, screening, communication, information sharing and support and palliative/end of life care.
A systematic search was carried out by Healthcare Improvement Scotland using selected websites and two primary medical databases to identify national and international guidelines.
Thirteen guidelines were appraised for quality using the AGREE II instrument. The instrument assesses the methodological rigour and precision used when developing a guideline. Two of the guidelines were not recommended for use. Of the remaining eleven guidelines, all were recommended for use.
The Lymphoma QPI Development group defined evidence based, measurable indicators with a clear focus on improving the quality and outcome of care provided.
The Group developed QPIs using the clinical recommendations set out in the briefing paper as a base, ensuring all indicators met the following criteria:
- Overall importance - does the indicator address an area of clinical importance that would significantly impact on the quality and outcome of care delivered?
- Evidence based - is the indicator based on high quality clinical evidence?
- Measurability - is the indicator measurable i.e. are there explicit requirements for data measurement and are the required data items accessible and available for collection?
A wide clinical and public engagement exercise was undertaken as part of development in May 2013 where the Lymphoma QPIs, along with accompanying draft minimum core dataset and measurability specifications, were made available on the Scottish Government website. During the engagement period clinical and management colleagues from across NHSScotland, patients affected by lymphoma cancer and the wider public were given the opportunity to influence the development of Lymphoma QPIs.
Draft documentation was circulated widely to professional groups, health service staff, voluntary organisations and individuals for comment and feedback.
Following the engagement period all comments and responses received were reviewed by the Lymphoma Cancer QPI Development Group and used to produce and refine the final indicators.
Email: Jennifer Doherty, LymphomaQPIPublicEngagement@gov.scot
Phone: 0300 244 4000 – Central Enquiry Unit
The Scottish Government
St Andrew's House