Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Services in Scotland: Findings from an analysis of surveys issued to NHS Boards in Autumn 2022

This report analyses survey responses from ten NHS Health Boards in Scotland to understand delivery of ME/CFS services, implementation of the updated ME/CFS NICE guidelines, barriers and opportunities to implementing the guidelines, and options for future ME/CFS service development.

1. Abbreviations

ACRT - Active Referral Clinical Triage

AHP - Allied Health Professional

CBT - Cognitive Behavioural Therapy

CCD - Case Consensus Definition

CFS - Chronic Fatigue Syndrome

CIC - NHS Centre for Integrative Care (NHS Greater Glasgow and Clyde)

CMHT - Community Mental Health Team

COPM - Canadian Occupational Performance Measure

Cou - Counsellor

CP - Clinical Psychologist

CT - Computed Tomography (medical imaging technique)

DI - Dietician

FI - Fitness Instructor

GET - Graded Exercise Therapy

GP - General Practitioner

LTC - Long-term Conditions

MDT - Multi-disciplinary Team

ME - Myalgic Encephalomyelitis

MFI - Management of Fatigue Index

MHN - Mental Health Nurse

MRI - Magnetic resonance imaging (medical imaging technique)

NHS - National Health Service

NICE - National Institute for Health and Care Excellence

OT - Occupational Therapy

PT - Physiotherapy

SF36 - Short Form (36) Health Survey

SWEMWBS - Short Warwick Edinburgh Mental Wellbeing Scale

TI - NHS Technical Instructor/Support worker

Vol - Volunteer



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