Covid-19 Post-Shielding Research: October 2023
This report explores how people formerly on Scotland’s Highest Risk List experienced shielding, how they’ve adapted since its end, and their views on current guidance. It highlights ongoing behaviours, areas of concern, and what support or information may help this group in the future.
Appendix D: Survey Results
Demographic 1
Do you consider yourself to have a long-term health condition? This could be a physical condition, a mental health condition, or both. It would include disabilities and conditions such as cardiovascular disease, diabetes and respiratory conditions, for example.
If so, please indicate whether this is a limiting condition (i.e. a health problem or disability which limits your daily activities or the work you can do, including problems that are due to old age) or not. Please select all that apply. For instance, you may consider yourself to have a limiting physical health condition, and a non-limiting mental health condition.
| Answer |
All (3,316) % |
Any shielding experience (487) % |
|---|---|---|
| A limiting physical condition | 22 | 53 |
| A non-limiting physical condition | 15 | 17 |
| A limiting mental health condition | 9 | 12 |
| A non-limiting mental health condition | 9 | 10 |
| None | 50 | 20 |
| Don’t know | 2 | 2 |
| Prefer not to say | 1 |
Question 1
Were you asked to shield at the start of the pandemic, in March 2020?
| Answer |
All (3,313) % |
Any shielding experience (487) % |
|---|---|---|
| Yes | 12 | 82 |
| No | 88 | 18 |
Question 2
Were you asked to shield or follow any additional advice at any point between March 2020 and May 2022?
| Answer |
All (3,282) % |
Any shielding experience (476) % |
|---|---|---|
| Yes | 12 | 85 |
| No | 88 | 15 |
Question 3
For which of the following conditions or treatments were you asked to shield for?
| Condition or treatment |
Any shielding experience (487) % |
|---|---|
| Solid organ transplant recipient who remains on long-term immune suppression therapy | 2 |
| Cancer | 9 |
| Severe respiratory conditions including cystic fibrosis, severe asthma and severe chronic obstructive pulmonary disease (COPD) | 23 |
| A rare disease or inborn errors of metabolism which significantly increase the risk of infections | 2 |
| I was on immunosuppression therapies sufficient to significantly increase risk of infection | 16 |
| Pregnant with significant heart disease. | 1 |
| I was added based on the judgement of my GP/Clinician. | 31 |
| Don’t know | 23 |
Question 4
Were you on the Highest Risk List (otherwise known as the shielding list) when it ended in May 2022?
| Base: Any shielding experience (486) | % |
|---|---|
| Yes | 41 |
| No | 59 |
Question 5
In May 2022 the Chief Medical Officer wrote to all of those on the Highest Risk List (otherwise known as shielding list) informing them that the highest risk list was coming to an end.
Two different letters were issued:
- General letter- informing those on the Highest Risk List, that they were no longer deemed at higher risk.
- Higher risk group letter- Informing those of the higher risk group that some may still be at higher risk, and advice on how to manage their Covid-19 risk.
Can you recall which of these letters you received?
| Base: Yes to Question 4 (196) | % |
|---|---|
| General letter | 28 |
| Higher risk group letter | 37 |
| I cannot recall | 35 |
Question 6
When you received this letter how reassured did you feel about the ending of the highest risk list?
| Base: Highest Risk List only (194) | % |
|---|---|
| Completely reassured | 12 |
| Somewhat reassured | 37 |
| Net: reassured | 49 |
| Not very reassured | 28 |
| Not at all reassured | 12 |
| Net: Not reassured | 40 |
| Don’t know | 11 |
Question 7
Looking at the list below, which, if any, of these physical or mental health conditions or illnesses do you currently have?
| Condition |
All (3,317) % |
Any shielding experience (487) % |
|---|---|---|
| Arthritis | 15 | 29 |
| Chest or breathing conditions (e.g. asthma/ bronchitis) | 14 | 31 |
| Diabetes | 8 | 21 |
| Heart, blood pressure or circulation conditions | 20 | 34 |
| Learning or behavioural disability (e.g. autism, Down’s Syndrome) | 3 | 3 |
| Mental health conditions | 19 | 22 |
| Problems or disabilities related to arms or hands | 5 | 13 |
| Problems or disabilities related to legs or feet | 10 | 25 |
| Problems or disabilities related to back or neck | 8 | 17 |
| Severe disfigurement, skin condition or allergies | 2 | 4 |
| Severe stomach, liver, kidney or digestive problem | 3 | 7 |
| Some other progressive disability or illness | 3 | 8 |
| Some other health problem or disability | 9 | 18 |
| None of these | 39 | 11 |
| Rather not say | 1 | 2 |
Question 8
And when were you diagnosed with this conditions?
| Condition |
Base N |
Prior to March 2020 % |
Between March 2020 and May 2022 % |
After May 2022 % |
|---|---|---|---|---|
| Arthritis | All (506) | 78 | 10 | 13 |
| ASE (142) | 86 | 7 | 7 | |
| Chest or breathing conditions (e.g. asthma/ bronchitis) | All (473) | 89 | 6 | 5 |
| ASE (150) | 92 | 4 | 4 | |
| Diabetes | All (274) | 79 | 12 | 9 |
| ASE (99) | 86 | 9 | 6 | |
| Heart, blood pressure or circulation conditions | All (651) | 78 | 9 | 13 |
| ASE (165) | 83 | 10 | 7 | |
| Learning or behavioural disability (e.g. autism, Down’s Syndrome) | All (87) | 49 | 22 | 29 |
| ASE (16) | 9 | 6 | 1 | |
| Mental health conditions | All (620) | 79 | 13 | 8 |
| ASE (107) | 86 | 7 | 7 | |
| Problems or disabilities related to arms or hands | All (167) | 71 | 13 | 16 |
| ASE (58) | 80 | 13 | 7 | |
| Problems or disabilities related to legs or feet | All (332) | 75 | 14 | 12 |
| ASE (120) | 76 | 15 | 8 | |
| Problems or disabilities related to back or neck | All (259) | 81 | 9 | 10 |
| ASE (80) | 83 | 10 | 7 | |
| Severe disfigurement, skin condition or allergies | All (60) | 53 | 3 | 4 |
| ASE (19) | 15 | 3 | 1 | |
| Severe stomach, liver, kidney or digestive problem | All (99) | 76 | 10 | 14 |
| ASE (33) | 86 | 2 | 12 | |
| Some other progressive disability or illness | All (87) | 74 | 19 | 7 |
| ASE (41) | 81 | 11 | 8 | |
| Some other health problem or disability | All (297) | 76 | 12 | 12 |
| ASE (84) | 79 | 10 | 11 |
NB: Shaded rows represent numbers rather than percentages, when n is less than 30.
Question 9
Thinking about your experience since the end of the highest risk list, which of the following statements best describes your current approach to managing risk?
| Answer |
All (3,312) % |
Any shielding experience (486) % |
|---|---|---|
| I still try to minimise all physical contact with people from other households | 3 | 7 |
| I still assess the risk of each activity on a case-by-case basis | 9 | 19 |
| I feel comfortable doing some of the things I did before COVID-19, | 14 | 23 |
| I feel comfortable doing most (or all) of the things I did before COVID-19 | 72 | 49 |
| Don’t Know | 1 | 3 |
Question 10
And which of the following statements best describes the current approach of (most) members of your household (if applicable) or other close contacts?
| Answer |
All (3,258) % |
Any shielding experience (478) % |
|---|---|---|
| They still try to minimise all physical contact with people from other households | 2 | 5 |
| They still assess the risk of each activity on a case-by-case basis | 7 | 15 |
| They feel comfortable doing some of the things they did before COVID-19 | 15 | 20 |
| They feel comfortable doing most (or all) of the things they did before COVID-19 | 72 | 54 |
| Don’t Know | 4 | 7 |
Question 11
How do you currently make decisions around activities that you did not or could not undertake during the shielding period?
| Answer |
Any shielding experience (487) % |
|---|---|
| I make my own assessments and judgements around what I consider safe | 73 |
| I follow the advice of my GP/clinician | 22 |
| I follow the advice of family/friends | 6 |
| I follow the advice of others who are vulnerable to Covid-19/had experience of shielding | 5 |
| I still look to/follow former Scottish Government guidance | 9 |
| I still look to/follow current Scottish Government guidance | 15 |
| None of the above | 8 |
Question 12
How would you describe impacts on the following since the end of the COVID-19 Highest Risk List?
| Answer |
Base N |
Very positive impact % |
Somewhat positive impact % |
Net: positive impact % |
Neither / nor % |
Net: negative impact % |
Somewhat negative impact % |
very negative impact % |
DK % |
|---|---|---|---|---|---|---|---|---|---|
| Your confidence when leaving home | All (3,317) | 27 | 16 | 43 | 38 | 17 | 13 | 4 | 3 |
| ASE (487) | 20 | 20 | 40 | 28 | 27 | 20 | 7 | 4 | |
| How much physical activity you do | All (3,317) | 21 | 18 | 39 | 41 | 16 | 11 | 6 | 3 |
| ASE (487) | 14 | 20 | 33 | 34 | 28 | 16 | 12 | 5 | |
| Your quality of life | All (3,317) | 22 | 19 | 41 | 38 | 18 | 13 | 5 | 3 |
| ASE (487) | 16 | 21 | 36 | 33 | 28 | 19 | 9 | 3 | |
| Your mental health | All (3,317) | 19 | 18 | 37 | 36 | 24 | 16 | 7 | 3 |
| ASE (487) | 18 | 16 | 35 | 30 | 31 | 17 | 14 | 4 | |
| Your physical health | All (3,317) | 17 | 19 | 36 | 42 | 20 | 15 | 5 | 3 |
| ASE (487) | 12 | 22 | 34 | 31 | 32 | 20 | 12 | 3 | |
| Your relationship with other family and friends | All (3,317) | 26 | 19 | 45 | 38 | 14 | 10 | 4 | 3 |
| ASE (487) | 25 | 20 | 45 | 33 | 19 | 11 | 8 | 3 | |
| Your relationship with your partner | All (3,317) | 26 | 12 | 38 | 40 | 6 | 3 | 3 | 16 |
| ASE (487) | 25 | 14 | 39 | 29 | 10 | 5 | 5 | 22 | |
| Your relationship with your children | All (3,317) | 22 | 9 | 31 | 40 | 4 | 3 | 2 | 25 |
| ASE (487) | 27 | 14 | 41 | 29 | 9 | 6 | 3 | 21 | |
| How lonely you feel | All (3,317) | 15 | 12 | 27 | 47 | 22 | 13 | 9 | 4 |
| ASE (487) | 14 | 12 | 26 | 39 | 31 | 15 | 17 | 4 | |
| Your employment | All (3,317) | 16 | 13 | 29 | 39 | 14 | 8 | 7 | 17 |
| ASE (487) | 11 | 10 | 21 | 30 | 17 | 7 | 11 | 32 | |
| The quality of care you receive | All (3,317) | 11 | 8 | 19 | 44 | 19 | 10 | 9 | 19 |
| ASE (487) | 15 | 12 | 27 | 33 | 25 | 10 | 14 | 15 | |
| Your financial situation | All (3,317) | 11 | 13 | 24 | 44 | 27 | 18 | 10 | 5 |
| ASE (487) | 10 | 13 | 23 | 40 | 32 | 16 | 15 | 5 | |
| Your education | All (3,317) | 10 | 7 | 17 | 53 | 8 | 5 | 3 | 22 |
| ASE (487) | 9 | 8 | 18 | 41 | 11 | 5 | 6 | 31 |
Question 13
How important do you consider the following factors to be when making decisions around day-to-day activities?
| Answer |
Base N |
Very important % |
Somewhat important % |
Net: Important % |
Not very important % |
Not at all important % |
Net: Not important % |
DK % |
|---|---|---|---|---|---|---|---|---|
| Whether these activities are indoors or outdoors | All (3,317) | 13 | 28 | 41 | 27 | 30 | 57 | 2 |
| ASE (487) | 23 | 36 | 59 | 21 | 18 | 39 | 2 | |
| How well-ventilated a building/space is | All (3,317) | 14 | 32 | 47 | 24 | 27 | 52 | 2 |
| ASE (487) | 29 | 37 | 66 | 17 | 13 | 30 | 3 | |
| How well-ventilated the vehicles/public transport I am travelling in are | All (3,317) | 19 | 32 | 50 | 21 | 25 | 46 | 4 |
| ASE (487) | 32 | 36 | 68 | 14 | 12 | 26 | 7 | |
| How many people are around me, and whether or not I know them | All (3,317) | 17 | 32 | 48 | 24 | 26 | 50 | 2 |
| ASE (487) | 30 | 35 | 65 | 19 | 14 | 32 | 3 | |
| How many people are around me, regardless of whether I know them | All (3,317) | 16 | 31 | 47 | 24 | 27 | 52 | 2 |
| ASE (487) | 28 | 37 | 65 | 18 | 14 | 32 | 3 | |
| Whether the people around me are wearing facemasks or other personal protective equipment | All (3,317) | 5 | 16 | 22 | 36 | 40 | 76 | 2 |
| ASE (487) | 13 | 27 | 40 | 35 | 21 | 56 | 4 |
Question 14
Has being included on the Highest Risk List had any of the following positive impacts?
| Answer |
Any shielding experience (487) % |
|---|---|
| Extra support from family or friends | 24 |
| I have tried to live (even) more healthily | 25 |
| Extra support when accessing healthcare | 12 |
| Better relationships with family or friends | 12 |
| Improved mental health | 6 |
| None of the above | 51 |
Question 15
And to what extent would you agree that past Scottish Government guidance in relation to Covid-19, i.e. that issued when the ‘highest risk group’ was identified, was:
| Answer |
Base N |
Strongly agree % |
Somewhat agree % |
Net: agree % |
Neither / nor % |
Net: disagree % |
Somewhat disagree % |
Strongly disagree % |
DK % |
|---|---|---|---|---|---|---|---|---|---|
| Clear | All (3,317) | 25 | 30 | 55 | 15 | 24 | 13 | 11 | 6 |
| ASE (487) | 26 | 27 | 53 | 21 | 22 | 12 | 10 | 5 | |
| Trustworthy | All (3,317) | 23 | 27 | 50 | 19 | 25 | 12 | 14 | 6 |
| ASE (487) | 23 | 30 | 53 | 20 | 23 | 11 | 12 | 4 | |
| Reassuring | All (3,317) | 20 | 28 | 48 | 19 | 26 | 14 | 12 | 7 |
| ASE (487) | 21 | 29 | 51 | 21 | 23 | 11 | 13 | 5 | |
| Impartial | All (3,317) | 20 | 24 | 44 | 25 | 22 | 10 | 12 | 10 |
| ASE (487) | 19 | 25 | 44 | 30 | 19 | 7 | 12 | 8 |
Question 16
And to what extent would you agree that Scottish Government guidance since the end of the Highest Risk List have been:
| Answer |
Base N |
Strongly agree % |
Somewhat agree % |
Net: agree % |
Neither / nor % |
Net: disagree % |
Somewhat disagree % |
Strongly disagree % |
DK % |
|---|---|---|---|---|---|---|---|---|---|
| Clear | All (3,317) | 16 | 22 | 38 | 25 | 27 | 13 | 13 | 10 |
| ASE (487) | 16 | 21 | 37 | 28 | 29 | 13 | 16 | 5 | |
| Trustworthy | All (3,317) | 16 | 21 | 37 | 25 | 27 | 12 | 15 | 11 |
| ASE (487) | 16 | 21 | 37 | 28 | 28 | 10 | 18 | 6 | |
| Reassuring | All (3,317) | 15 | 21 | 36 | 26 | 26 | 14 | 13 | 11 |
| ASE (487) | 17 | 20 | 37 | 27 | 30 | 14 | 16 | 6 | |
| Impartial | All (3,317) | 15 | 19 | 34 | 30 | 23 | 11 | 12 | 13 |
| ASE (487) | 14 | 18 | 32 | 33 | 26 | 10 | 16 | 9 |
Question 17
What concerns, if any, have you had over the ending of the Highest Risk List (HRL)?
| Answer | Any shielding experience (487)% |
|---|---|
| People might become complacent | 43 |
| People might be less mindful of the needs and concerns of those who were on the HRL | 37 |
| It might be difficult/complex to re-establish the HRL if needed in future | 17 |
| I am concerned for another reason | 4 |
| I have had no concerns about this | 33 |
| Don’t know | 7 |
Question 18
Which, if any, of the following would help you to become less concerned since the ending of the Highest Risk List?
|
Base: Those who have concerns over the ending of the Highest Risk List Answer |
Any shielding experience (289) % |
|---|---|
| Encouragement for ongoing vaccination for Covid-19 | 59 |
| Better ventilation in public places | 47 |
| Ongoing government guidance on behaviours that reduce Covid-19 transmission | 44 |
| More regular information on the number of Covid-19 cases | 45 |
| Updated guidance for those who were on the Highest Risk List | 45 |
| Advice from my GP on how best to manage my Covid-19 risk | 27 |
| Don’t Know | 6 |
Question 19
How do you see the future?
| Answer | Any shielding experience (483)% |
|---|---|
| I will remain worried for some time about being at higher risk and this will affect my quality of life | 17 |
| I will remain worried for some time about being at higher risk, but this will not really affect my quality of life | 29 |
| I will soon no longer think of myself as being in a separate higher risk group | 39 |
| Don’t Know | 14 |
Question 20
To what extent do you agree or disagree with the following statements:
| Answer |
Base N |
Strongly agree % |
Somewhat agree % |
Net: agree % |
Neither / nor % |
Net: disagree % |
Somewhat disagree % |
Strongly disagree % |
DK % |
|---|---|---|---|---|---|---|---|---|---|
| I know what the current guidance in relation to Covid-19 is | All (3,317) | 16 | 27 | 43 | 14 | 34 | 15 | 19 | 9 |
| ASE (487) | 16 | 26 | 42 | 20 | 29 | 13 | 16 | 9 | |
| I find the current guidance confusing | All (3,317) | 8 | 15 | 24 | 33 | 23 | 11 | 12 | 20 |
| ASE (487) | 12 | 15 | 27 | 35 | 23 | 11 | 13 | 15 | |
| I know who to talk to about the current guidance | All (3,317) | 10 | 20 | 30 | 20 | 36 | 17 | 19 | 13 |
| ASE (487) | 13 | 21 | 34 | 21 | 33 | 15 | 18 | 12 | |
| The current information from the Scottish Government on Covid-19 is clear | All (3,317) | 11 | 18 | 29 | 24 | 31 | 14 | 17 | 17 |
| ASE (487) | 13 | 17 | 29 | 26 | 31 | 13 | 18 | 13 | |
| The current guidance in relation to Covid-19 is reassuring | All (3,317) | 9 | 16 | 24 | 32 | 24 | 11 | 12 | 19 |
| ASE (487) | 10 | 14 | 25 | 33 | 27 | 13 | 14 | 15 | |
| The current guidance in relation to Covid-19 is trustworthy | All (3,317) | 12 | 18 | 29 | 30 | 23 | 10 | 12 | 19 |
| ASE (487) | 13 | 15 | 28 | 31 | 26 | 11 | 15 | 14 |
Question 21
In terms of your behaviour since the end of restrictions and the highest risk list, which of the following do you consider when deciding whether to do things that you were not able during the COVID-19 pandemic?
| Answer |
All (3,317) % |
Any shielding experience (487) % |
|---|---|---|
| Advice from a clinician | 15 | 31 |
| Scottish Government Guidance from during restrictions | 13 | 18 |
| Existing Scottish Government guidance | 24 | 23 |
| Other (please specify) | 4 | 6 |
| None of the above | 57 | 42 |
Question 22
To what extent are you aware of the following schemes:
| Answer |
Base % |
I know a lot about it % |
I have heard of it and know a little about it % |
I have heard of it but don’t know anything about it % |
I have never heard of the scheme % |
Don’t know % |
|---|---|---|---|---|---|---|
| Distance Aware Scheme | All (3,317) | 7 | 15 | 9 | 62 | 7 |
| ASE (485) | 15 | 22 | 9 | 48 | 7 | |
| Winter Signage Scheme (now known as the Stay Well Signage Scheme) | All (3,317) | 2 | 7 | 6 | 76 | 8 |
| ASE (484) | 5 | 9 | 9 | 68 | 8 |
Question 23
Which of the following types of measures do you see as acceptable, if there was another variant/surge?
| Answer |
All (3,258) % |
Any shielding experience (478) % |
|---|---|---|
| Public health messaging and provision in shops and other public settings, such as ‘hand sanitiser stations’ | 77 | 73 |
| The use of face coverings in public settings, where these are not normally worn | 73 | 70 |
| Physical distancing measures, such as distance markers on public transport or in shops and other public settings | 65 | 65 |
| Social distancing measures, such as restrictions on the number of people from different households who can meet | 50 | 55 |
| Physical restrictions, such as ‘Stay at Home’ orders | 39 | 45 |
| The closure of shops, schools, and other public settings | 29 | 29 |
| Don’t know | 8 | 11 |
Question 24
And who do you think should have to comply with these measures, if there was another variant/surge?
| Answer |
All (3,301) % |
Any shielding experience (487) % |
|---|---|---|
| The entire population of Scotland | 58 | 66 |
| Only those deemed vulnerable to Covid-19 | 19 | 14 |
| Only those who are not vaccinated against Covid-19 | 8 | 7 |
| Nobody | 10 | 8 |
| Don’t know | 5 | 5 |
Question 25
How would you describe your awareness of your eligibility for the following?
|
Base: Any shielding experience Answer |
I’m aware of this and have/will utilise this % |
I’m aware of this but have not/will not utilise this % |
I’m not aware of these % |
Don’t know % |
|---|---|---|---|---|
| COVID-19 treatments | 53 | 13 | 29 | 6 |
| Vaccination | 79 | 10 | 7 | 4 |
Question 26
Were you aware that Scottish Government would be able to contact those on the Highest Risk List again in future if they needed to?
| Answer |
Any shielding experience (481) % |
|---|---|
| I was aware of this | 44 |
| I was not aware of this | 46 |
| Don’t know | 10 |