Publication - Report
Child Rights and Wellbeing Impact Assessment for the Strategic Framework for Action on Palliative and End of Life Care
Published:
19 Aug 2016
An assessment of palliative care policy on children's rights and wellbeing in line with the UN Convention of the Rights of the Child (UNCRC)and Getting it Right For Every Child (GIRFEC).
8 page PDF
225.1 kB
8 page PDF
225.1 kB
Child Rights and Wellbeing Impact Assessment for the Strategic Framework for Action on Palliative and End of Life Care
Child Rights and Wellbeing Impact Assessment of the Strategic Framework for Action on Palliative and End of Life Care
Child Rights and Wellbeing Impact Assessment of the Strategic Framework for Action on Palliative and End of Life Care
Policy/measure | Strategic Framework for Action on Palliative and End of Life Care |
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Summary of policy aims and desired outcomes | Palliative and End of Life Care Aims
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Directorate; Division; Team | Healthcare Quality and Strategy Directorate Planning and Quality Division Palliative and End of Life Care Policy Team |
Executive Summary | On 18 December 2015 the Scottish Government published the Strategic Framework for Action on Palliative and End of Life Care ( SFA). http://www.gov.scot/Publications/2015/12/4053 The SFA sets out the approach and shared vision for people in Scotland where by 2021 everyone who needs palliative care will have access to it, including children and young adults. The SFA recognises that children and young people in Scotland have different needs to the adult population when it comes to living with life limiting illness and for palliative and end of life care. The SFA sets out 10 commitments including a specific commitment to support and promote the provision of palliative care in the 0-25 years age group. |
Background | The SFA sets out the Scottish Government's commitments in support of the continuous improvement in the quality of palliative and end of life care, reflecting the commitment to the quality ambitions outlined in the Healthcare Quality Strategy (2010), the National Performance Framework Outcomes and also the National Health and Wellbeing Outcomes. It is part of the Scottish Government's transformational change programme and is consistent with the recently published National Clinical Strategy. In 2012, the Scottish Children and Young People's Palliative Care Executive ( SCYPPEx) published a framework for the delivery of palliative care for children and young people in Scotland. This document aimed to ensure that recognised pathways for palliative care exist for every child and young person from the point of diagnosis of a life-limiting condition. The SFA aims to build on this and other evidence to enhance palliative and end of life care for children and young people. |
Scope of the CRWIA | A CRWIA is required so that the impact of the SFA can be assessed over time. |
Children and young people's views and experiences | The Scottish Government held three engagement events in Aberdeen, Glasgow and Edinburgh to discuss the development of the SFA. An engagement paper was also written to support the development of the SFA. The Palliative and End of Life Stakeholder Group included input from a Children's Hospice Association Scotland ( CHAS) young adult and a parent. Both have been involved in meetings where this policy has been discussed at length. Commitment 9 of the SFA includes that a measurement infrastructure will be developed to ensure real-time data is available. This will include that the experiences of the child and family is appropriately captured to inform further and future policy developments. |
Key Findings To include impact on UNCRC rights and contribution to wellbeing indicators | The SFA sits alongside the Scottish Government's commitment to person centred care. In line with the principles of the United Nations Convention on the Rights of the Child ( UNCRC) and Getting It Right For Every Child ( GIRFEC) the Scottish Government affirms that children must be included in making decisions about their care and treatment where they have the capacity to do so. As a result of conducting the CRWIA there were several aspects of children and young people's palliative and end of life care identified for improvement and further research as the SFA is implemented. (i) Need for more parental support
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Conclusions and Recommendations | The SFA will have a positive impact on children and young people in Scotland including those living with life limiting illnesses and those with family members with palliative and end of life care needs. The SFA includes a commitment to support and promote the further development of holistic palliative care for the 0-25 years age group. As a result of the CRWIA it is concluded that the Scottish Government should proceed with the SFA because it will build on and improve the palliative and end of life care available to children and young people who are living with life limiting diseases as well as children who are bereaved or have a family member with palliative care needs. The SFA is compatible with, and complementary to the intentions of the UNCRC. |
Monitoring and review | The SFA will be monitored by the Palliative and End of Life Care policy lead in the Scottish Government. SFA implementation will also be formally overseen by a National Implementation Advisory Group ( NIAG). The development of the SFA was assisted by the membership of the Palliative and End of Life Care National Advisory Group and Stakeholder Group. The Scottish Government is committed to ensuring that the membership of these groups, as well as the public at large including children and organisations that represent children, will be able to contribute to future implementation actions. |
CRWIA Declaration | |
CRWIA required | CRWIA not required |
✓ | |
Authorisation | |
Policy lead Tim Warren Palliative and End of Life Care Policy |
26 July 2016 |
Deputy Director or equivalent Elizabeth Sadler Deputy Director Planning and Quality Division |
26 July 2016 |
Contact
Email: Tim Warren, Tim.Warren@gov.scot