Cancer strategy 2023 to 2033

This Cancer strategy for Scotland sets out our vision for the next ten years to improve cancer survival and provide excellent, equitably accessible care. It was developed in collaboration with people with lived experience and our wider partners.


Appendix 2: Current Data Sources

Cancer Dataset

Patient and carer experiences of services

Source Organisation

Care Opinion

Type

Patient Experience/Quality of Care

Cancer Dataset

Focus groups

Source Organisation

Health and Social Care Alliance Scotland

Type

Patient Experience/Quality of Care

Cancer Dataset

Quality Performance Indicators (QPIs)

Source Organisation

Healthcare Improvement Scotland (HIS)

(Regional Cancer Networks, PHS, Scottish Cancer Network)

Type

Patient Experience/Quality of Care

Cancer Dataset

Cancer Patient Experience Survey

Source Organisation

Scottish Government

Type

Patient Experience/Quality of Care

Cancer Dataset

Scottish Cancer Registry

Information on all new cancer cases in Scotland since 1958. Original source of most PHS cancer datasets.

Breast Cancer Screening

Bowel Cancer Screening

Cancer Stage Distribution

Cervical Cancer Screening

Detect Cancer Early Staging

Diagnosis Audit

Diagnostic Waiting Times

Cancer Waiting Times for confirmed cancers

All Urgent Suspected Cancer referrals

Incidence

Mortality

Survival

Systemic Anti-Cancer Treatment (SACT) activity

Waiting Times for Treatment

Radiotherapy

Rapid Cancer Diagnosis Service

Barrett’s Dataset

Cytosponge

Colon Capsule Endoscopy

Endoscopy Surveillance

Post-colonoscopy cancer rates – for symptomatic and screened bowel cancers

Pathology data

Source Organisation

Public Health Scotland (PHS)

Type

Population/Screening/Access/ Diagnosis/Treatment/ Outcomes/Pathways

Epidemiology of disease

Contact

Email: cancerpolicyteam@gov.scot

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