1. Smith R, All changed, changed utterly, BMJ 1998; 316:1917-8.
2. (2009) "Better Health, Better Care: National Delivery Plan for Children and Young People's Specialist Services in Scotland" January 2009, Scottish Government. www.scotland.gov.uk. RR Donnelley B57674 01/09
3. (2005) "Guidance on Cancer Services: Improving Outcomes in Children and Young People with Cancer: the manual" August 2005, National Institute for Health and Clinical Excellence. London. ISBN:1-84629-067-8
4. (2011) "National Standards for Children with Cancer aged 0 to 15 years", Welsh Government, Cardiff. ISBN: 978-0-7504-6267-9
5. (2010) "The Healthcare Quality Strategy for NHSScotland" May 2010, The Scottish Government, Edinburgh. www.scotland.gov.uk ISBN: 978-0-7559-9323-9
6. Cancer Research UK. Childhood Cancer - UK Statistics. Cancer Research UK; 2004. http://info.cancerresearchuk.org /cancerstats/childhoodcancer/
7. Campbell J, Wallace WH, Bhatti LA et al: Cancer in Scotland: trends in incidence, mortality and survival 1975-1999. Edinburgh. Information & Statistics Division; 2004. http://isd.scot.nhs.uk/isd/servlet/FileBuffer?namedFile=SHS_Childhood_Cancer_in_Scotland.pdf&pContentDispositionType=inline
8. Oeffinger KC, Eshelman DA, Tomlinson GE et al: Grading of late effects in young adult survivors of childhood cancer followed in an ambulatory adult setting. Cancer 88:1687-1695, 2000.
9. SIGN Guideline 76 on Long Term Follow-up of Survivors of Childhood Cancer, Scottish Intercollegiate Guidance Network 2005.
10. Wallace et al, Developing Strategies for Long Term Follow Up of Survivors of Childhood Cancer. BMJ 2001;323;271-274.
11. Therapy based Long-term follow-up. Practice Statement. UK Children's Cancer Study Group, Late Effects Group. Editors Skinner R, Wallace WHB, Levitt GA. 2nd Edition, 2005.
12. Edgar AB, Duffin K, Borthwick S, Marciniak-Stepak P, Harrison S, Haywood M, Wallace AH. Intensity of long term follow up for survivors of childhood or teenage cancer can safely be determined by therapy-based risk-stratification. (Submitted January 2012)
13. Models of care to achieve better outcomes for children and young people living with and beyond cancer. National Cancer Survivorship Initiative. Children and Young People Workstream. http://www.ncsi.org.uk/what-we-are-doing/children-young-people/
14. Blaauwbroek R, Barf HA, Groenier KH et al: Family doctor-driven follow-up for adult childhood cancer survivors supported by a web-based survivor care plan. J Cancer Surviv. 2011 [Epub ahead of print].
15. Framework for Palliative Care Services for Children & Young People - Final Draft ( to be published)
16. Progressive Cancer:A Study by Paediatric Oncology Nurses' Forum/United Kingdom Children's Cancer Study Group Palliative Care Working Group. J Vickers Et Al J Clin Oncol 25:4472-4476. © 2007 by American Society of Clinical Oncology
17. (2009) "Better Health, Better Care: National Delivery Plan for Specialist Services for Children and Young People" January 2009, Scottish Government, Edinburgh. RR Donnelly B57674 01/09. Referred to hereinafter as 'The NDP'.
18. (2009) "Better Health, Better Care: National Delivery Plan for Children and Young People's Specialist Services in Scotland" p 2, January 2009, Scottish Government. www.scotland.gov.uk. RR Donnelley B57674 01/09
19. Ibid, piii
Email: Fiona McKinlay