Deaths and numbers registered under the Scottish Infected Blood Support Scheme (SIBSS): FOI release

Information requested

Since 24th September 2018 to the present, how many people registered with the SIBSS have passed away?

How many people are now registered with the schemes?

How many are in each category? For example, HIV + Hep C, HIV, Hep C.

Response

1) Since 24th September 2018 to the present, how many people registered with the SIBSS have passed away?

Based on the information the Scottish Government has, four people registered with the Scottish Infected Blood Support Scheme (SIBSS) passed away between 24 September 2018 and 31 March 2019.
While our aim is to provide information whenever possible, in this instance the Scottish Government does not have the information you have requested regarding deaths between 1 April 2019 and the date of your request. However, you may wish to contact NHS National Services Scotland (NSS) who should be able to provide this information for you. Information on how to make an FOI request to NSS is at https://nhsnss.org/how-nss-works/freedom-of-information/.

Section 17(1) of FOISA (information not held) requires the Scottish Government to notify you if it does not have the information you requested. The Scottish Government does not have the information you have asked for because this information is held by NHS National Services Scotland, which manages SIBSS. They provide data on deaths to the Scottish Government, but only on a quarterly basis.

2) How many people are now registered with the schemes?

Based on the information provided by NSS as at 29 March 2019, 528 people were registered with the Scottish Infected Blood Support Scheme.

3) How many are in each category? For example, HIV + Hep C, HIV, Hep C.
 

Category	Number
Chronic hepatitis c (HCV)	328
Advanced hepatitis c (HCV)	117
Coinfected (HIV and HCV) or HIV only	23
Widows, widowers or partners – chronic HCV	12
Widows, widowers or partners – advanced HCV, HIV or chronic HCV with advanced HCV annual widows payment	42
Widows, widowers or partners - coinfected	6
Total	528

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