Self-directed Support Implementation Study 2018: report 2

Presents the results of: an international literature review; an assessment of current data and other evidence in Scotland on self-directed support; material from case studies.


Appendix 2: Literature review: extracted references

1. Arksey H, et al. Individual budgets: impacts and outcomes for carers. Canterbury: Personal Social Services Research Unit; 2009. Available from: https://www.pssru.ac.uk/pub/IBSENCarersRep.pdf

2. Arksey H, Baxter K. Exploring the temporal aspects of direct payments. Br J Soc Work. 2012;42(1):147-64. Available from: https://academic.oup.com/bjsw/article/42/1/147/1649863

3. Arntz M, Thomsen SL. Crowding out informal care? Evidence from a field experiment in Germany. Oxf. Bull. Econ. Stat. 2011;73(3):398-427.

4. Association of Directors of Adult Social Services, Local Government Association. Putting people first: measuring progress. London: Association of Directors of Adult Social Services; 2009. Available from: https://www.adass.org.uk/adassmedia/stories/PPF%20Measuring%20Progress%207%20May%20NA.pdf

5. Baxter K, Glendinning C. Supporting choice: Support planning, older people and managed personal budgets. ‎J Soc Work. 2016;16(4):453-69.

6. Brooks J, Mitchell W, Glendinning C. Personalisation, personal budgets and family carers. Whose assessment? Whose budget? J Soc Work. 2017;17(2):147-66. Available from: http://eprints.whiterose.ac.uk/90384/1/JBjsw3sept2015.pdf

7. Campbell N, et al. Final report from the support planning and brokerage demonstration project. London: Office for Disability Issues; 2011. Available from: https://www.ndti.org.uk/uploads/files/support-planning-and-brokerage-project-report.pdf.

8. Carers Trust. Progressing personalisation: a review of personal budgets and direct payments for carers. London: Carers Trust; 2012. Available from: https://www.adass.org.uk/AdassMedia/stories/Carers/progressing_personalisation.pdf

9. Essex Coalition of Disabled People. Briefing paper 1: positive impacts of cash payments for service users and their families. Findings from the second round of a three-year longitudinal study in Essex. London: Office for Public Management; 2011. Available from: http://www.ncvo.org.uk/images/documents/practical_support/public_services/Briefing_1_Positive_impacts_of_cash_payments.pdf.

10. Ettelt S, et al. Direct payments in residential care trailblazer programme evaluation: preliminary report. London: Policy Research Unit in Policy Innovation Research (PIRU); 2014. Available from: http://www.piru.ac.uk/assets/files/DP%20Trailblazer%20Preliminary%20report.pdf.

11. Fisher KR, Purcal C. Effectiveness of individual funding for disability support. Social Policy Research Centre Newsletter. 2010;105(1):4-7.

12. Glendinning C, et al. Evaluation of the individual budgets pilot programme: final report. York: University of York Social Policy Research Unit; 2008. Available from: http://www.york.ac.uk/inst/spru/pubs/pdf/IBSEN.pdf.

13. Graham T, et al. The special educational needs and disability pathfinder programme evaluation: final impact research report. London: Great Britain. Department for Education; 2015. Available from: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/448157/RB471_SEND_pathfinder_programme_final_report_brief.pdf

14. Hatton C, Walters J. Personal health budget holders and family carers: the POET surveys 2015. London: Think Local Act Personal; 2015. Available from: http://www.thinklocalactpersonal.org.uk/_library/Resources/SDS/POETPHB2015FINAL.pdf

15. Heller T, Arnold CK, van Heumen L, McBride EL, Factor A. Self-directed support: impact of hiring practices on adults with intellectual and developmental disabilities and families. Am J Intellect Dev Disabil. 2012;117(6):464-77.

16. Lakey L, Saunders T. Getting personal? Making personal budgets work for people with dementia. London: Alzheimer's Society; 2011. Accessed at: https://www.alzheimers.org.uk/download/downloads/id/1281/getting_personal.pdf.

17. Prabhakar M, Johnson R. Individual budgets for families with disabled children: final technical report. London: Department for Education; 2011. Accessed at: https://www.education.gov.uk/publications/eOrderingDownload/DFE-RR145a.pdf.

18. University Of Bristol Norah Fry Research Centre, et al. LGBTQI+ disabled people and self-directed social care support. London: NIHR School for Social Care Research; 2017. Available from: https://www.basw.co.uk/system/files/resources/basw_91958-9_0.pdf

19. Woolham J, et al. Do direct payments improve outcomes for older people who receive social care? Differences in outcome between people aged 75+ who have a managed personal budget or a direct payment. Ageing Soc. 2017;37(5):961-84. Available from: https://www.cambridge.org/core/services/aop-cambridge-core/content/view/772F12193787151D336404176681E79E/S0144686X15001531a.pdf/do_direct_payments_improve_outcomes_for_older_people_who_receive_social_care_differences_in_outcome_between_people_aged_75_who_have_a_managed_personal_budget_or_a_direct_payment.pdf

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