Endometriosis queries: FOI release
Information request and response under the Freedom of Information (Scotland) Act 2002.
Information requested
The average waiting times for Endometriosis diagnosis in Scotland since 2010, broken down by year.
The average waiting times for Endometriosis treatment in Scotland since 2010, broken down by year
Any minutes, meeting notes, summary or responses from the Endometriosis Lives Experience Forum from March 2024 and any subsequent meetings.
How many times Scottish Government Ministers have met with the Women’s Health Champion, broken down by month since January 2023.
How many times the endometriosis advisory group has met since being established in 2022.
Response
I enclose a copy of most of the information you requested.
The answer to your question is as follows:
1. The average waiting times for Endometriosis diagnosis in Scotland since 2010, broken down by year.
The Scottish Government does not have the information you have asked for because routinely collected data on the waiting time for a diagnosis of endometriosis are not available.
As such, I hereby provide you with formal notice under section 17(1) of FOISA that the Scottish Government does not have the information you have requested.
This question was recently asked in the Scottish Parliament. Further details can be found here: Written question and answer: S6W-33606 | Scottish Parliament Website
2. The average waiting times for Endometriosis treatment in Scotland since 2010, broken down by year.
The Scottish Government does not have the information you have asked for because routinely collected data on the waiting time for treatment for endometriosis are not available.
This question was recently asked in the Scottish Parliament further details can be found here: Written question and answer: S6W-33606 | Scottish Parliament Website
3. How many times Scottish Government Ministers have met with the Women’s Health Champion, broken down by month since January 2023.
January 2023 – 1
June 2023 – 2
September 2023 – 1
January 2024 – 2
June 2024 -1
September 2024 – 3
November 2024 – 1
December 2024 – 2
January 2025– 1
The Minister and the Champion have also mutually been in attendance at a number of meetings and events, however as these were not formal meetings between the Minister and the Champion they are deemed out of scope of this request.
4. How many times the endometriosis advisory group has met since being established in 2022.
Twice
5. Any minutes, meeting notes, summary or responses from the Endometriosis Lives Experience Forum from March 2024 and any subsequent meetings.
The information you have requested is provided in Annex A, B and C of this letter.
The Endometriosis Lived Experience Forum were invited to join the Women’s Health Plan Lived Experience Stakeholder Group Development Day, hosted by The Alliance on 5 March 2025. This day was to discuss the development of the next phase of the Scottish Government’s Women’s Health Plan. This has therefore been considered a subsequent meeting of the group and within scope of the request.
About FOI
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Contact
Please quote the FOI reference
Central Correspondence Unit
Email: contactus@gov.scot
Phone: 0300 244 4000
The Scottish Government
St Andrew's House
Regent Road
Edinburgh
EH1 3DG