Scottish Infected Blood Support Scheme (SIBSS) beneficiaries: FOI release

Information requested

1) How many beneficiaries are registered with the Scottish Infected Blood Support Scheme?
2) How many are in each category? For example, HIV + Hep C, HIV, Hep C.
NB please provide breakdown of chronic Hep C category to include severe, moderate and not affected.
3) Since July 2017, how many Scottish victims have died?
4) Since the last day of the Infected Blood Inquiry hearings on 28/2/20, how many Scottish victims have died?

Response

The answer to your questions are as follows. This is based on the most recent data we have from SIBSS so may not be fully up to date.

1) There are 540 beneficiaries are registered with the Scottish Infected Blood Support Scheme.

2) The numbers in each category are as follows:

Category	Number
Advanced HCV (Stage 2)	108
Chronic HCV (Stage 1) – no noticeable impact	96
Chronic HCV (Stage 1) - Moderately Affected	82
Chronic HCV (Stage 1) - Severely Affected	154
Coinfected / HIV	24
Widow/Widower/Civil Partner/Long-term cohabiting partner	76

3) Since 1 July 2017 up to 30 June 2020, SIBSS is aware of the deaths of 51 SIBSS beneficiaries, 47 of whom were infected beneficiaries and 4 were widows, widowers, civil partners or long-term cohabiting partners.

However we do not have data on how many of those who died were Scottish or on whether there are Scottish people registered with other support schemes who have died.

4) Since 28 February up to 30 June 2020, we have been notified by SIBSS of the deaths of 8 SIBSS beneficiaries, 6 of whom were infected beneficiaries and 2 were widows, widowers, civil partners or long-term cohabiting partners.

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