Eating disorder lived experience panel - grant award: form and guidance

Applications are invited from organisations to establish and manage a lived experience panel.


The Lived Experience Panel will provide the National Review of Eating Disorder Services Implementation Group, its associated working groups, and then the subsequent National Eating Disorder Network, with views and feedback on how the recommendations from the National Review should be taken forward. 

As described in Section 3, it is important that the Panel has wide representation within its members, for example, including a range of eating disorder diagnoses, men with eating disorders, LGBT representatives, people from ethnic minorities, a range of socio-economic backgrounds, and geographical locations (rural/urban). The Panel should also include family, carers and wider support networks of those who have been diagnosed with an eating disorder. 

It is also a priority for membership of The Panel to reach those who wouldn’t normally take part in this type of work, so that a wide variety of views can be gathered. We would expect The Panel to have a membership of around 15 participants. Membership of The Panel should be refreshed regularly to ensure that different views can be gathered and shared, and to ensure that panel members do not feel overburdened by their participation. It might also be helpful for The Panel to be supported by a wider network of lived experience voices who can be called upon for wider discussion if necessary.

The Panel is expected to engage in different ways. It is important that panel members are asked what activities they can meaningfully get involved in, for example, participating in meetings, reading and commenting on documents, and/or taking part in surveys.

If panel members feel comfortable doing so, representatives from the Panel can attend National Review of Eating Disorder Services Implementation Group meetings and working group meetings to provide feedback and views. 

It is important that panel members are supported to share their views and feedback on the delivery of the recommendations and are clearly shown how the Lived Experience Panel will influence policy making and decision making. However, it is also important that the panel members know that there is a possibility that views and opinions of panel members will not necessarily always determine the Implementation Group, National Network or Government’s approach to taking forward the National Review’s recommendations or future policy direction. 


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