The Patient Safety Commissioner (PSC) Patient Reference Group was formed in October 2020 to advise the Scottish Government (SG) on the development of proposals for the appointment of a PSC for Scotland. Once developed, the proposals will be consulted on publically, with the results of this consultation informing the Cabinet Secretary for Health and Sport’s decision on how to progress the appointment.
Members of the PSC Patient Reference Group represented and connected with their wider networks (Mesh, Primodos and Sodium Valproate) to ensure that the views of these wider groups were fed in, and that they were kept up to date, as the proposals were developed.
The group was wound up once the responses to the consultation had been analysed, although some members went on to become members of the Patient Safety Commissioner for Scotland Bill Advisory Group.
Members of the group, who were contacted through existing Mesh, Primodos and Sodium Valproate networks, were invited to self-nominate to join the group. In order to ensure focussed discussions the group was made up of around 12 members.
The PSC Patient Reference Group met three times and also interacted by email, via the group secretariat PSC@gov.scot.
Meetings were minuted; however, in order to be a safe space for members to speak freely, members could request that certain information, such as personal stories, be kept within the confines of the group.
Where group members were given access to sensitive or confidential information this was made clear by the chair and/or group Secretariat, and members were asked not to share this information more widely.
Interaction with other groups
A PSC Specialist Reference Group, formed of representatives from existing organisations with responsibilities around patient safety and patient voice, was also set up in October 2020. The key aim of this group is to advise on whether any of the proposals put forward duplicate or cross-over with existing processes and structures. A member of the PSC Patient Reference Group is invited to sit on the PSC Specialist Reference Group, to act as a representative.
- Patient Safety Commissioner: Specialist Reference Group
- Patient Safety Commissioner for Scotland Bill: Advisory Group
- Rona Johnson, Epilepsy Scotland
- Lisa Megginson
- Wilma Ord, Association for Children Damaged by Hormone Pregnancy Tests
- Vicki Middleton, Association for Children Damaged by Hormone Pregnancy Tests
- Janet Williams, INFACT
- Emma Murphy, Fetal Anti-Convulsant Syndrome Association (FACSA)
- June Greenhorn
- Emma Mackay
- Sharon Mercado, Scottish Mesh Survivors
- Nan McGradie, Association for Children Damaged by Hormone Pregnancy Tests
- Jan Clark
- Claire Daisley
- Karen Neil, Scottish Mesh Survivors
- Nancy Honeyball
- Marie Lyon, Association for Children Damaged by Hormone Pregnancy Tests
- Charlie Bethune, Valproate Scotland
- Susan Cole, Valproate Victims
- Karen Keely, Organisation for Anti-Convulsant Syndrome (OACS) Charity UK and Ireland
- Donna O’Boyle (Chair), Professional Adviser to Chief Medical Officer and Chief Nursing Officer
- Anncris Roberts, Unit Head, Scottish Government – Safety, Openness and Learning Unit
- Margaret Syme, Team Leader, Scottish Government – Safety, Openness and Learning Unit
- Nicki Crossan, Senior Policy Manager, Scottish Government – Safety, Openness and Learning Uni
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