Self-Directed Support: A Review of the Barriers and Facilitators

This is a report on the published literature on the barriers and facilitators of self- directed support. It was undertaken to inform a research study funded by the Scottish Government 2009-2011 that is evaluating initiatives in three local authorities. These initiatives aim to improve take up of self-directed support for people eligible for social care and other public funds.


7 REFERENCES

1. Carr S, Dittrich R. Personalisation: a rough guide. London: Social Care Institute for Excellence 2010.

2. Reid Howie Associates Study of the workforce and employment issues surrounding self-directed support, Edinburgh, Scottish Government Social Research, 2010.

3. Scottish Executive. National Guidance on self-directed support. Edinburgh: Scottish Executive 2007.

4. Scottish Government. Self-Directed Support: A National Strategy for Scotland: Consultation. Edinburgh: Scottish Government 2010a.

5. Scottish Government. Self-Directed Support (Direct Payments) Scotland, 2010. Edinburgh: Scottish Government 2010b.

6. Kinnaird L., Fearnley K. Let's Get Personal, - personalisation and dementia, Alzheimer Scotland.Edinburgh 2010..

7. Leadbeater C, Lownsborough H. Personalisation and participation: the future of social care in Scotland. London: Demos 2005.

8. Changing Lives. Personalisation: A Shared Understanding 2008: Available from: http://www.socialworkscotland.org.uk/resources/pub/SharedUnderstandingofPersonalisationpaper.pdf .

9. Beresford P. Fair Shares. The Guardian. 2008 Wednesday January 23 2008.

10. Hampshire County Council. Getting personal: a fair deal for better care and support. Winchester: Adult Services Department, Hampshire County Council 2008.

11. Henwood M, Hudson B. Individual Budgets and Personalisation: A New Model for Integration? Journal of Integrated Care. 2008;16(3):8-16.

12. HM Government. Putting People First: A shared vision and commitment to the transformation of Adult Social Care. London 2007.

13. Hudson B, Henwood M. Prevention, personalisation and prioritisation in Social Care: squaring the circle?: Commission for Social Care Inspection 2008.

14. Kennedy J. Personalisation and Joint Working: OLM Adult Social Services Survey. Journal of Integrated Care. 2009;17(4):39-42.

15. Manthorpe J, Stevens M. The personalisation of adult social care in rural areas. Cheltenham: Commission for Rural Communities 2008.

16. Mickel A. Professionals split over future of adult social care: social workers harbour doubts on personalisation. Community Care [serial on the Internet]. 2008: Available from: http://www.communitycare.co.uk/Articles/2008/10/22/109761/personalisation-exclusive-poll-of-social-workers-views.html .

17. SPN. Power to the People? Notes from a study day on personalisation: Social Perspectives Network with Changing Minds and SCIE 2008.

18. Vallelly S, Manthorpe J. Choice and Control in Specialist Housing: starting conversations between commissioners and providers. Housing Care and Support. 2009b;12(2):9-15.

19. Clark H, Gough H, Macfarlane A. "It Pays Dividends": Direct payments and older people. Bristol: Joseph Rowntree Foundation University of Chichester 2004.

20. Davidson D, Luckhurst L, editors. Making choices, taking control; direct payments and mental health users/survivors. Joseph Rowntree Foundation London: National Centre for Independent Living; 2002.

21. Department of Health. Direct Payments Guidance: Community Care, Services for Carers and Children's Services (Direct Payments) Guidance. In: Health Do, editor. London 2003.

22. Department of Health. Direct payments for people with mental health problems: a guide to action. London: Department of Health 2006.

23. Witcher S, Stalker K, Roadburg M, Jones C. Direct Payments: The Impact on Choice and Control for Disabled People. Edinburgh: Scottish Executive Central Research Unit 2000.

24. Fernandez J-L, Kendall J, Davey V, Knapp M. Direct Payments in England: Factors linked to variations in local provision. Journal of Social Policy. 2007; 36(1):97-121.

25. Riddell S, Pearson C, Jolly D, Barnes C, Priestley M, Mercer G. The Development of Direct Payments in the UK: Implications for Social Justice. Social Policy and Society. 2005;4(1):75-85.

26. Harrington S. Choice and Control in Community Care: Individual budgets and direct payments. National Homecare Conference; 9th October 2006; London, UK 2006.

27. Homer T, Gilder P. A Review of Self Direct Support in Scotland. Edinburgh: Scottish Government 2008.

28. Leece D, Leece J. Direct Payments: Creating a Two-Tiered System in Social Care? British Journal of Social Work. 2006;36:1379-93.

29. Maglajlic R, Brandon D, Given D. Making Direct Payments a Choice: a report on the research findings. Disability and Society. 2000;15(1):99-113.

30. McMullen K. The Direct Approach: disabled people's experience of direct payments: London: SCOPE 2003.

31. Murray-Neill R, Heslop P, Serle K, March H, Karen. Direct payments: the future now. A Life in the Day. 2008;12(3):18-22.

32. Newbigging K, Lowe J. Direct Payments and Mental Health: new directions. York: Joseph Rowntree Foundation 2005.

33. Pearson C. Money talks? Competing discourses in the implementation of direct payments. Critical Social Policy. 2000; 20(4):459-77.

34. Ridley J, Jones L. Direct What? The Untapped Potential of Direct Payments to Mental Health Service Users. Disability and Society. 2003;18(5):643-58.

35. Glendinning C, Challis D, Fernandez J-L, Jacobs S, Jones K, Knapp M, et al. Evaluation of the Individual Budgets Pilot Programme: Final Report. York: Social Policy Research Unit, University of York 2008.

36. Woolham J, Benton C. Your Money and Your Life? Self-Directed Support and Personal Budgets in Northamptonshire: An Evaluation of Impact and Outcomes on People who use Adult Social Services. Northampton: Northamptonshire Social Services 2009.

37. Stuart O. Will community-based support services make direct payments a viable option for black and minority ethnic service users and carers? London: SCIE 2006.

38. Close L. Explaining about... individual budgets and self-directed support. Working with Older People. 2009;13(2):9-12.

39. Dale SB, Brown R, Phillips B, Carlson BL. The Experiences of Workers Hired Under Consumer Direction in Arkansas. Princeton, NJ: Mathematica Policy Research, Inc 2003.

40. Mahoney KJ, Zgoda K. Empowering Individuals, Families and Communities: The "Cash and Counseling" Case Study. In: Berkman B, editor. Handbook of Social Work in Health and Aging. Oxford: Oxford University Press; 2006. p. 809-16.

41. Mahoney KJ, Simon-Rusinowitz L, Loughlin D, Desmond SM, Squillace MR. Determining Personal Care Consumers' Preferences for a Consumer-Directed Cash and Counseling Option: Survey Results from Arkansas, Florida, New Jersey, and New York Elders and Adults with Physical Disabilities. Health Services Research. 2004; 39(3):643-64.

42. Simon-Rusinowitz L, Marks LN, Loughlin D, Desmond SM, Mahoney KJ, Zacharias BL, et al. Implementation Issues for Consumer-Directed Programs: Comparing Views of Policy Experts, Consumers, and Representatives. Journal of Aging and Social Policy. 2002; 14(3/4):95-118.

43. Robert Wood Johnson Foundation. Choosing Independence: An Overview of the Cash and Counseling Model of Self-Directed Personal Assistance Services. Princeton, NJ: Robert Wood Johnson Foundation 2006.

44. Daly G, Roebuck A, Dean J, Goff F, Bollard M, Taylor C. Gaining Independence: An Evaluation of Service Users' Accounts of the Individual Budgets Pilot. Journal of Integrated Care. 2008;16(3):17-25.

45. Dowson S. Custom and Control: The training and accreditation of independent support brokers. Ipswich: The National Development Team2008.

46. Glasby J, Duffy S. Our Health, Our Care, Our Say - what could the NHS learn from individual budgets and direct payments?: Birmingham: Health Services Management Centre, University of Birmingham and in Control 2007.

47. Mind. Personalisation in mental health: breaking down the barriers. A guide for care coordinators. London: Mind 2009b.

48. Dowson S, Greig R. The Emergence of the Independent Support Broker Role. Journal of Integrated Care. 2009;17(4):22-30

49. Vallelly S, Manthorpe J. The impact of personalisation on older people's housing: Overall project summary: London: Housing 21, 2009.

50. Hatton C, Waters J, Duffy S, Senker J, Crosby N, Poll C, et al. A report on in Control's Second Phase: Evaluation and learning 2005-2007. London: in Control 2008.

51. Kremer M. Consumers in Charge of Care: the Dutch personal budget and its impact on the market, professionals and the family. European Societies. 2006; 8(3):385-401.

52. Manthorpe J, Jacobs S, Rapaport J, Challis D, Netten A, Glendinning C, et al. Training for Change: Early Days of Individual Budget and the Implications for Social Work and Care Management Practice: A Qualitative Study of the Views of Trainers. British Journal of Social Work. 2009; 39(7):1291-1305.

53. Manthorpe J, Stevens M, Rapaport J, Harris J, Jacobs S, Challis D, et al. Safeguarding and System Change: Early Perceptions of the Implications for Adult Protection Services of the English Individual Budgets Pilots--A Qualitative Study. British Journal of Social Work. 2009: 39(8) 1465-80.

54. Rabiee P, Moran N, Glendinning C. Individual Budgets: Lessons from Early Users' Experiences. British Journal of Social Work. 2009; 39: 918-35.

55. ADASS (Association of Directors of Adult Social Services). Personalisation and the law: Implementing Putting People First in the current legal framework. London: ADASS 2009

56. SCIE. Choice, control and individual budgets: emerging themes. London: Social Care Institute for Excellence 2007.

57. Manthorpe J, Stevens M. Increasing Care Options in the Countryside: Developing an Understanding of the Potential Impact of Personalization for Social Work with Rural Older People. British Journal of Social Work. 2010: 40(5) 1452-69.

58. Manthorpe J, Manthorpe J, Stevens M, Rapaport J, Challis D, Jacobs S, Netten A, Jones K, Knapp M, Wilberforce M and Glendinning C Individual budgets and adult safeguarding: parallel or converging tracks? Further findings from the evaluation of the individual budget pilots, Journal of Social Work, first published on September 21, 2010 as doi:10.1177/1468017310379452.

.59. Routledge M, Porter Z. Personal budgets in social care: the challenge of scaling up. Tizard Learning Disability Review. 2008;13(3):16-22.

60. Spillman BC, Black KJ, Ormond BA. Beyond Cash and Counseling: The Second Generation of Individual Budget-based Community Long Term Care Programs for the Elderly. Washington, DC: The Urban Institute 2007.

61. Department of Health. Experiences of implementing personal health budgets: 2nd interim report. Personal Health Budgets Evaluation team ( PHBE), Personal Social Services Research Unit ( PSSRU), University of Kent, for Department of Health London: Department of Health 23 November, 2010.

http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_122032

62. Department of Health. Making personal budgets work for older people: developing experience. London: Department of Health 2008.

63. Duffy S. The Economics of Self-Directed Support. Journal of Integrated Care. 2007a;15(2):26-37

64. Duffy S. Care Management and Self-Directed Support. Journal of Integrated Care. 2007b;15(5): 7-13.

65. Peak M, Waters J. My Budget, My Choice: Implementing Self-Directed Support in the City of London, October 2008. London: in Control, with Adult Social Care Department, City of London 2008.

66. Edwards T, Waters J. It's your life - take control: The implementation of self-directed support in Hertfordshire. Hertford: in Control, with Hertfordshire County Council 2009.

67. Henwood M, Hudson B. Here to Stay? Self-directed support: Aspiration and Implementation: Department of Health 2007b.

68. Jones R. Self-Directed Support: Watching out for the Pitfalls. Journal of Integrated Care. 2008;16(1): 44-7.

69. Leadbeater C, Bartlett J, Gallagher N. Making It Personal. London: DEMOS 2008.

70. Pitts J, Soave V, Waters J. Doing It Your Way: the story of Self-Directed Support in Worcestershire. Worcester: in Control with Worcestershire County Council 2009.

71. Richards S, Waters J, Frisby B. This time it's personal: Making self-directed support a reality for people with learning disabilities in Northamptonshire. Northampton: in Control with Northamptonshire County Council 2009

72. Grossman BR, Kitchener M, Mullan JT, Harrington C. Paid Personal Assistance Services: An Exploratory Study of Working-Age Consumers' Perspectives. Journal of Aging and Social Policy. 2007;19(3):27-45.

73. Gruman C, Kellett K, Porter M. Connecticut's Personal Assistance Services Program: An Evaluation of Workforce Barriers. The Gerontologist. 2003;43.

74. in Control. Willing and Able: A briefing paper on offering Direct Payments to people who need help with decisions: in Control 2004b.

75. Lord J, Hutchinson P. Individualised Support and Funding: building blocks for capacity building and inclusion. Disability and Society. 2003;18(1):2003.

76. James AN. A critical consideration of the cash for care agenda and its implications for social services in Wales.Journal of Adult Protection. 2008;10(3):23-34.

77. Roeher Institute. Individualized Quality of Life Project: Final Evaluation Report. Canada: Roeher Institute 2000.

78. Schore J, Foster L, Phillips B. Consumer Enrolment and Experiences in the Cash and Counseling Program. Health Services Research. 2007;42(1 part 2):446-66.

79. Simon-Rusinowitz L, Bochniak AM, Mahoney KJ, Marks LN, Hecht D. Implementation Issues for Consumer-Directed Programs: A Survey of Policy Experts. Generations. 2000;Fall 2000:34-40.

80. Tilly J, Wiener JM. Consumer-Directed Home and Community Services: Policy Issues. Washington, DC: The Urban Institute2001 Contract No.: Occasional Paper Number 44.

81. Alzheimer Scotland. Let's Get Personal. Edinburgh: Alzheimer Scotland2010.

82. 6 P. The implementation of Direct Payments: independent variables and hypotheses from the literature. [Working paper]. 2005.

83. Arksey H, Kemp PA. Dimensions of Choice: A narrative review of cash-for-care schemes. York: Social Policy Research Unit, University of York2008.

84. CSCI. Direct Payments: What are the Barriers? London: Commission for Social Care Inspection2004.

85. SENSE. Deafblind people and families' experiences of direct payments: SENSE2008.

86. Ridley J, Jones L. "Direct What": A Study of Direct Payments to Mental Health Service Users. Edinburgh: Scottish Executive 2002a.

87. Dewar B, O'May F, Donaldson C. Direct Payments: The Views of Older People from Rural Communities and Ethnic Minority Groups. Edinburgh: The Royal Bank of Scotland Centre for the Older Person's Agenda 2005.

88. Taylor NSD. Obstacles and Dilemmas in the Delivery of Direct Payments to Service Users with Poor Mental Health. Practice: Social Work in Action. 2008; 20(1):43-55.

89. Brewis R. A choice and a voice. www.in-control.org.uk ; 2007 [cited 2009 13.08.09]; Available from: http://www.dhcarenetworks.org.uk/Personalisation/Topics/Browse/Health/?parent=2731&child=2672 .

90. Mind. Personalisation in mental health: a review of the evidence. London: Mind2009a.

91. Cabinet Office. Making a Difference: Direct Payments. In: Cabinet Office and Department of Health, editor. London 2005.

92. Carr S, Robbins D. The implementation of individual budget schemes in adult social care. London: SCIE 2009.

93. Evans C, Carmichael A. A user controlled best value review of direct payments: Joseph Rowntree Foundation 2002.

94. Priestley M, Jolly D. A Postcode Lottery? Explaining the uneven implementation of direct payments in the UK. Independent Living and Direct Payments: The National Picture Conference; 22nd March 2006; Weetwood Hall Hotel, Leeds, 2006.

95. Scourfield P. Implementing the Community Care (Direct Payments) Act: Will the Supply of Personal Assistants meet the Demand and at what Price? Journal of Social Policy. 2005;34(3):469-88.

96. Hasler F, Stewart A. Developing direct payments in the North-East of England. York: Joseph Rowntree Foundation 2004.

97. Williams V. How can local authorities increase the take-up of Direct Payment schemes to adults with learning disabilities?: Research in Practice for Adults 2006.

98. Dowling S, Manthorpe J, Cowley S. Working on person-centred planning: From amber to green light? Journal of Intellectual Disabilities. 2007;11(1):65-82.

99. HASCAS. A Content Analysis of Direct Payments Policies in England: An Evaluation: Health and Social Care Advisory Service, Department of Health 2004.

100. Mind. Personalisation in mental health: creating a vision. London: Mind2009c.

101. Orellana K, Newton C. Individual Budgets, Older People and Age Concern. London: Age Concern 2007.

102. Pearson C. Keeping the cash under control: what's the problem with direct payments in Scotland? Disability and Society. 2004;19(1):3-14.

103. Robertson J, Hatton C, Emerson E, Elliott J, McIntosh B, Swift P, et al. Reported Barriers to the Implementation of Person-Centred Planning for People with Intellectual Disabilities in the UK. Journal of Applied Research in Intellectual Disabilities. 2007; 20(4):297-307.

104. d'Aboville E. Implementing direct payments: a support organisation perspective. In: Leece J, Bornat J, editors. Developments in Direct Payments. Bristol: Policy Press; 2005. p. 145-8.

105. Davey V, Fernandez J-L, Knapp M, Vick N, Jolly D, Swift P, et al. Direct Payments: A National Survey of Direct Payments Policy and Practice. London: London School of Economics and Political Science, Unit PSSRU; 2007a.

106. DPS Management Committee. Direct Payments Finance Project Report. 2003.

107. Riddell S, Ahlgren L, Pearson C, Williams V, Watson N, MacFarlane H. The implementation of direct payments in Scotland for people who use care services. Edinburgh: Centre for Research in Education Inclusion and Diversity 2006a.

108. Riddell S, Priestley M, Pearson C, Mercer G, Barnes C, Jolly D, et al. Disabled People and Direct Payments: A UK Comparative Study 2006b. Report No.: ESRC Award RES-000-23-0263, Swindon, ESRC.

109. RIPFA. Direct Payments for those using mental health services. Totnes: RIPFA 2007.

110. Ellis K. Direct Payments and Social Work Practice: The Significance of 'Street-Level Bureaucracy' in Determining Eligibility. British Journal of Social Work. 2007; 37:405-22.

111. Adams L, Godwin L. Employment Aspects and Workforce Implications of Direct Payments. London: Prepared for Skills for Care by IFF Research 2008.

112. RCN Policy Unit. Individual Budgets: Royal College of Nursing 2008 Contract No.: 04/2008.

113. Swift P. Champions can leap hurdles: obstacles to uptake of direct payments. Community Care. 2007 6 September 2007;1689:32-3.

114. Anonymous family carer. In Control? Making sure we're not out of control! Some issues for people considering a direct payment or individualised budget. The Journal of Adult Protection. 2008;10(3):14-22.

115. Alakeson V. Putting Patients in Control: The case for extending self-direction into the NHS. London: The Social Market Foundation 2007a.

116. Department of Health. Moving Forward: Using the Learning from the Individual Budget Pilots. London: Department of Health 2008.

117. Social Interface. A survey on the implementation of the current Direct Payments Scheme in Wales: Final report. Cardiff: Social Interface for the Welsh Assembly 2007.

118. Carers UK. Choice or Chore? Carers' experiences of direct payments. London: Carers UK 2008.

119. Glendinning C, Bell D. Rethinking Social Care and Support: what can England learn from other countries? York: Joseph Rowntree Foundation 2008.

120. Browning D. Evaluation of the Self-Directed Support Network: A Review of Progress up to 31st March 2007: Department of Health 2007.

121. CSCI. Support Brokerage: a discussion paper. Newcastle: Commission for Social Care Inspection ( CSCI) 2006 Contract No.: CSCI-137.

122. Robertson J, Emerson E, Hatton C, Elliott J, McIntosh B, Swift P, et al. The Impact of Person-Centred Planning. Lancaster: Institute for Health Research, Lancaster University 2005.

123. Mahoney KJ. The Future of Cash and Counseling: The Framers' View. Health Services Research. 2007; 42(1 part 2):550-66.

124. Tilly J, Wiener JM, Cuellar AE. Consumer-Directed Home and Community Services Programs in Five Countries: Policy Issues for Older People and Government. Washington, DC: The Urban Institute 2000.

125. Priestley M, Jolly D, Pearson C, Ridell S, Barnes C, Mercer G. Direct Payments and Disabled People in the UK: Supply, Demand and Devolution. British Journal of Social Work. 2007; 37:1189-204.

126. Carmichael A, Brown L. The Future Challenges for Direct Payments. Disability and Society. 2002;17(7):797-808.

127. Audit Commission. Choosing well: Analysing the costs and benefits of choice in local public services. London: Audit Commission 2006.

128. NCIL. The Direct Payments Development Fund: National Centre for Independent Living 2006.

129. Bamber C, Flanagan P. Mental health and self-directed support. Mental Health Today. 2008; (July/August) 2008:26-8.

130. Bleasdale M. Empowerment Through Individualised Funding: Challenges for people with disabilities, service providers and governments. 'Sharing the Road' Conference; 25th and 26th June 2001; Griffith University, Brisbane 2001.

131. Dawson C. Implementing direct payments: York: Joseph Rowntree Foundation 2000.

132. Jordan C. Direct Payments in Action: Implementation by Social Services Departments in England. London: SCOPE 2003.

133. Manthorpe J, Stevens M, Challis D, Netten A, Glendinning C, Knapp M, et al. Individual budget projects come under the microscope. Mental Health Today. 2008c (Dec 2008):22-6.

134. Spandler H, Vick N. Enabling access to direct payments: An exploration of care co-ordinators' decision-making practices. Journal of Mental Health. 2005;14(2):145-55.

135. Henwood M, Hudson B. Evaluation of the self-directed support network: An overview of key messages: Department of Health 2007a.

136. Smyth L, Stewart A, Gelling J, Campbell J, Baker S, Stevens S, et al. Voices of Experience. In: Leece J, Bornat J, editors. Developments in Direct Payments. Bristol: Policy Press; 2005. p. 125-42.

137. Askheim OP. Personal assistance - direct payments or alternative public service. Does it matter for the promotion of user control? Disability and Society. 2005; 20(3):247-60.

138. Caldwell J. Experiences of families with relatives with intellectual and developmental disabilities in a consumer-directed support program. Disability and Society. 2007; 22(6):549-62.

139. SCIE. Older people's individual budgets networking day: London: Social Care Institute for Excellence 2005.

140. Waters J, Hay M. Steering My Own Course: The introduction of Self-Directed Support in Cambridgeshire. Cambridge: in Control, with Cambridgeshire County Council 2009.

141. Askheim OP. Personal Assistance for People with Intellectual Impairments: experiences and dilemmas. Disability and Society. 2003;18(3):325-39.

142. Flynn M. Developing the role of personal assistants. Leeds: Skills for Care 2005.

143. Wiener JM. Commentary: Cash and Counseling in an International Context. Health Services Research. 2007; 42(1 part 2):567-76.

144. Duffy S. Individual Budgets: Transforming the allocation of resources for care. Journal of Integrated Care. 2005;13(1):8-16.

145. Duffy S, Fulton K. Should We Ban Brokerage?: in association with Paradigm 2009.

146. San Antonio PM, Simon-Rusinowitz L, Loughlin D, Eckert K, Mahoney KJ. Case Histories of Six Consumers and Their Families in Cash and Counseling. Health Services Research. 2007; 42(1 part 2):533-49.

147. Stainton T, Boyce S. 'I have got my life back': users' experience of direct payments. Disability and Society. 2004; 19(5):443-54.

148. Nicholls A. Older People's Services and Individual Budgets: Good Practice - Examples and Ideas: London: Care Services Improvement Partnership 2007.

149. Baxter K, Glendinning C, Clarke S, Greener I. Domiciliary Care Agency Responses to Increased User Choice: Perceived Threats, Barriers and Opportunities from a Changing Market. Final Report to the Department of Health. York: Social Policy Research Unit, University of York 2008a.

150. Davey V, Snell T, Fernandez J-L, Knapp M, Tobin R, Jolly D, et al. Schemes Providing Support to People Using Direct Payments: A UK Survey. London: Personal Social Services Research Unit: London School of Economics and Political Science 2007b.

151. Glendinning C, Arksey H, Jones K, Moran N, Netten A, Rabiee P. The Individual Budgets Pilot Projects: Impact and Outcomes for Carers. York: Social Policy Research Unit, University of York

Personal Social Services Research Unit, University of Kent 2009.

152. Swift P, Hill M. Factors Aiding and Hindering Implementation of Direct Payments. www.pssru.ac.uk ; 2006.

153. Simon-Rusinowitz L, Shinogle J, Martinez Garcia G, Ruben K, Mahoney KJ. How Did Older Consumers Fare in a Consumer-Directed Personal Care Model? Lessons from the Cash and Counseling Demonstration and Evaluation. XVI Annual Meeting of the Gerontological Society of America; November 17, 2007; San Francisco, CA, 2007.

154. Dale SB, Brown R. How does Cash and Counseling Affect Costs? Health Services Research. 2007; 42(1):488-509.

155. Spandler H, Vick N. Opportunities for independent living using direct payments in mental health. Health and Social Care in the Community. 2006; 14(2):107-15.

156. Carlson BL, Foster L, Dale SB, Brown R. Effects of Cash and Counseling on Personal Care and Well-Being. Health Services Research. 2007;42(1 part 2):467-87.

157. in Control. Individual Budgets: An exploration of the advantages of individual budgets for disabled people and some of the challenges of implementation issues: Wyhthall: in Control 2004a.

158. Renshaw C. Do self-assessment and self-directed support undermine traditional social work with disabled people? Disability and Society. 2008; 23(3):283-6.

159. ACEVO (Association of Chief Executives of Voluntary Organisations. Making it personal: a social market revolution: the interim report of the commission on personalisation. London: ACEVO 2009.

160. Rowlett N, Deighton S. Simplifying direct payments: How Lincolnshire County Council utilised risk management to deliver genuine improvement. Journal of Care Services Management. 2009; 3(2):131-43.

161. Clements L. Individual Budgets and Carers. Pending publication. 2008.

162. Foster M, Harris J, Jackson K, Morgan H, Glendinning C. Personalised social care for adults with disabilities: a problematic concept for frontline practice. Health and Social Care in the Community. 2006;14(2):125-35.

163. Bennett S. Investigation of Individualised Funding and Local Area Coordination-Type Processes: A Literature Review. Auckland: Bennett & Bijoux Limited 2009.

164. Fitzpatrick J. Dreaming for Real: The Development of Partners for Inclusion. Journal of Integrated Care. 2006;14(1):27-34.

165. Hunt L. Empower and protect [personalisation and choice]. Community Care. 2008 24 July 2008;1732:28-9.

166. Hutchinson P, Lord J, Salisbury B. North American approaches to individualised planning and direct funding. In: Leece J, Bornat J, editors. Developments in Direct Payments. Bristol: Policy Press; 2005. pp. 49-62.

167. Webster K. A Yes Man no more. Learning Disability Today. 2008:32-4.

168. CIPFA. Self Directed Support: Direct Payments - a guide for Local Authority finance managers. London: The Chartered Institute of Public Finance and Accountancy 2009. Report No.: ISBN 9781845081843.

169. Kodner DL. Consumer-directed services: lessons and implications for integrated systems of care. International Journal of Integrated Care. 2003.

170. Jones K, Netten A. The Costs of Change: A Case Study of the Process of Implementing Individual Budgets Across Pilot Local Authorities in England. Health & Social Care in the Community. 2010; 18(1):51-8.

171. Alzheimer Scotland. Personalisation of social care: the potential for people with dementia. Edinburgh: Alzheimer Scotland 2009.

172. Baxter K, Glendinning C, Clarke S. Making informed choices in social care: the importance of accessible information. Health and Social Care in the Community. 2008b; 16(2):197-207.

173. Head J. Personalisation within a housing context. Working with Older People. 2009; 13(2):25-7.

174. Miles J. Independent advocacy with older people: what will be the impact of personalisation? Working with Older People. 2009; 13(2):28-31.

175. OPM. Delivering Personal Budgets for Adult Social Care: Reflections from Essex. London: OPM in partnership with Essex Coalition of Disabled People, Chelmsford: Essex County Council. 2010.

176. Sang B. Personalisation: Consumer Power or Social Co-production. Journal of Integrated Care. 2009;17(4):31-8.

177. Benjamin A, Matthias RE. Work-Life Differences and Outcomes for Agency and Consumer-Directed Home-Care Workers. The Gerontologist. 2004;44:479-88.

178. Ottmann G, Allen J, Feldman P. Self-Directed Community Aged Care for People with Complex Needs: A Literature Review. Melbourne: UCCO/Deakin University QRN 2009.

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