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Living and Dying Well: A national action plan for palliative and end of life care in Scotland


Annex D


1 World Health Organization definition of Palliative Care, 2004. http://www.who.int/cancer/palliative/definition/en/
2 World Health Organization. Palliative Care: the solid facts. World Health Organization, Geneva: 2004
3 World Health Organization. Palliative care for older people. World Health Organization, Geneva: 2004
4 Murray S, Kendall M, Boyd K and Sheikh A. Illness trajectories and palliative care. BMJ 2005; 330; 1007-1011 doi:10.1136/bmj.330.7498.1007-1011
5 Lynn J, Adamson DM. Living well at the end of life. Adapting health care to serious chronic illness in old age. Washington: Rand Health, 2003
6 The Scottish Government. Better Health Better Care: Action Plan. Edinburgh. December 2007 http://www.scotland.gov.uk/Publications/2007/12/11103453/0
7 Scottish Partnership for Palliative Care. Palliative and end of life care in Scotland: the case for a cohesive approach. Edinburgh: 2007
8 Audit Scotland. Review of palliative care services in Scotland. Edinburgh August 2008
9 World Health Organization and Quality of Life - Spirituality, Religiousness, and Personal Beliefs; WHO, Geneva, 1998
10 Scottish Executive. Delivering for Health. Edinburgh: 2005
11 General Register Office for Scotland. Scotland's Population 2006 - The Registrar General's Annual Review of Demographic Trends. Edinburgh: 2007
12 Department of Health. End of Life Care Strategy - promoting high quality care for all adults at the end of life, London: 2008
13 Scottish Partnership for Palliative Care. Public awareness of palliative care - Report of the findings of the first national survey in Scotland into public knowledge and understanding of palliative care. Edinburgh: 2003
14 Being Human: The Self Management Strategy for Long Term Conditions in Scotland
15 Chochinov H M. Dying, Dignity, and New Horizons in Palliative End-of-Life Care CA Cancer J Clin 2006;56:84-103
16 Prognostic Indicator Guidance Paper © Gold Standards Framework Centre. England 2005, September 2008
17 Murray SA, Sheikh A. Making a Difference Palliative Care Beyond Cancer Care for all at the end of life BMJ, 2008, 336:958-959, doi: 10.1136/bmj.39535.491238.94
18 Lynn J, Making a Difference, Palliative Care Beyond Cancer, Reliable comfort and meaningfulness. BMJ 2008;336:958-959 (26 April), doi:10.1136/ bmj.39535.656319. 94
19 Ellershaw J and Ward C. Care of the dying patient: the last hours or days of life. BMJ 2003;326:30-4
20 Scottish Partnership for Palliative Care: Living and dying with advanced heart fialure: a palliative care approach. Edinburgh 2008
21 Gold Standards Framework website http://www.goldstandardsframework.nhs.uk
22 Gold Standards Framework Scotland website http://www.gsfs.scot.nhs.uk/
23 Liverpool Care Pathway for the Dying Patient ( LCP) website http://www.mcpcil.org.uk/liverpool_care_pathway
24 The Scottish Government CEL6 (2008). NHS Continuing Healthcare http://www.sehd.scot.nhs.uk/mels/CEL2008_06.pdf
25 Scottish Government, Assessment Review Co ordinating Group. National minimum information standards for all adults in Scotland, Edinburgh, July 2008
26 User Defined Service Evaluation Tool ( UDSET): http://www.jitscotland.org.uk/action-areas/themes/involvement/support-materials.html
27 Adults with Incapacity (Scotland) Act 2000 http://www.opsi.gov.uk/legislation/scotland/acts2000/asp_20000004_en_1
28 Scottish Ambulance Service and Scottish Partnership for Palliative Care End of Life Care Plan. August 2008
29 Scottish Partnership for Palliative Care. Making good care better: National practice statements for general palliative care in adult care homes in Scotland. Edinburgh 2006
30 Gold Standards Framework Scotland, Final Report: http://www.gsfs.scot.nhs.uk/documents/GSFS%20Final%20Report.pdf
31 General Medical Council. Consent: patients and doctors making decisions together. 2008 http://www.gmc-uk.org/news/articles/Consent_guidance.pdf
32 General Medical Council: Confidentiality: Protecting and Providing Information. 2004 http://www.gmc-uk.org/guidance/current/library/confidentiality.asp
33 University of Stirling. Cancer Care Research Centre. Developing Cancer Services: Patient and Carer Experiences. 2008 http://www.cancercare.stir.ac.uk/publications/index.htm