Publication - FOI/EIR release

Scottish Infected Blood Support Scheme (SIBSS) beneficiaries: FOI release

Published: 2 Sep 2020

Information request and response under the Freedom of Information (Scotland) Act 2002

Published:
2 Sep 2020
Scottish Infected Blood Support Scheme (SIBSS) beneficiaries: FOI release
FOI reference: FOI/202000069530
Date received: 2 Aug 2020
Date responded: 7 Aug 2020
Information requested

1) How many beneficiaries are registered with the Scottish Infected Blood Support Scheme?
2) How many are in each category? For example, HIV + Hep C, HIV, Hep C.
NB please provide breakdown of chronic Hep C category to include severe, moderate and not affected.
3) Since July 2017, how many Scottish victims have died?
4) Since the last day of the Infected Blood Inquiry hearings on 28/2/20, how many Scottish victims have died?

Response

The answer to your questions are as follows. This is based on the most recent data we have from SIBSS so may not be fully up to date.

1) There are 540 beneficiaries are registered with the Scottish Infected Blood Support Scheme.

2) The numbers in each category are as follows:

Category

Number

Advanced HCV (Stage 2)

108

Chronic HCV (Stage 1) – no noticeable impact

96

Chronic HCV (Stage 1) - Moderately Affected

82

Chronic HCV (Stage 1) - Severely Affected

154

Coinfected / HIV

24

Widow/Widower/Civil Partner/Long-term cohabiting partner

76

3) Since 1 July 2017 up to 30 June 2020, SIBSS is aware of the deaths of 51 SIBSS beneficiaries, 47 of whom were infected beneficiaries and 4 were widows, widowers, civil partners or long-term cohabiting partners.

However we do not have data on how many of those who died were Scottish or on whether there are Scottish people registered with other support schemes who have died.

4) Since 28 February up to 30 June 2020, we have been notified by SIBSS of the deaths of 8 SIBSS beneficiaries, 6 of whom were infected beneficiaries and 2 were widows, widowers, civil partners or long-term cohabiting partners.

About FOI

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Contact

Please quote the FOI reference
Central Enquiry Unit
Email: ceu@gov.scot
Phone: 0300 244 4000

The Scottish Government
St Andrews House
Regent Road
Edinburgh
EH1 3DG