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Scottish Cancer Patient Experience Survey 2015/16: Analysis of Free-text Comments

Description
ISBN9781786524843
Official Print Publication Date
Website Publication DateOctober 04, 2016

Listen

Dr Maggie Cunningham1 and Professor Mary Wells2

1 Research and Evaluation Consultancy Services
2 Professor of Cancer Nursing Research & Practice, NMAHP RU, University of Stirling

ISBN 978 1 78652 484 3 (web only publication)
PPDAS 80080

This document is also available in pdf format (2.6 MB)

Contents

Acknowledgements

Executive Summary
Introduction
Methods
Findings
Positive comments
Negative comments

Introduction

Methods
Design and Participants
Data Analysis

Results
Positive Comments
Information
Efficient Processes
Good Support
Good Clinical Care
Trust In the System
Negative Comments
Not feeling confident within the system
Not feeling that individual needs were met
Structures
Processes
Analysis of Individual Comment Boxes
The lead up to diagnosis and finding out what was wrong with you (Comment Box 1)
Decisions about treatment (Comment Box 2)
Support (Comment Box 3)
Operation or overnight stay in hospital (Comment Box 4)
Day patient/outpatient care (Comment Box 5)
Chemotherapy/radiotherapy treatment (Comment Box 6)
Experience of cancer care (Comment Box 7)

Discussion
Strengths and Limitations
Ideas for future consideration
Conclusions

References

Appendix A Members of Survey Steering Group

Appendix B Data analysis process

Appendix C Overview of Comments

Appendix D Definitions of Negative Sub Themes

List of Tables

Table 1: Comment Boxes
Table 2: Demographic description of all respondents and those that left at least one comment
Table 3: Summary of the themes and sub-themes

List of Figures

Figure 1: Positive aspects of care (number of comments)
Figure 2: Negative Aspects of Care
Figure 3 Positive subthemes for Comment Box 1 – Lead up to diagnosis
Figure 4 Negative subthemes for Comment Box 1 - Lead up to diagnosis
Figure 5 Positive subthemes for Comment Box 2 – The way decisions were made about treatment
Figure 6 Negative subthemes for Comment Box 2 - The way decisions were made about treatment
Figure 7 Positive subthemes for Comment Box 3 – The support you received
Figure 8 Negative subthemes for Comment Box 3 - The support you received
Figure 9 Positive subthemes for Comment Box 4 – The care you received when you had an operation or stayed overnight in hospital
Figure 10 Negative subthemes for Comment Box 4 - The care you received when you had an operation or stayed overnight in hospital
Figure 11 Positive subthemes for Comment Box 5 – The day patient/outpatient care you received
Figure 12 Negative subthemes for Comment Box 5 - The day patient/outpatient care you received
Figure 13 Positive subthemes for Comment Box 6 – Chemotherapy/Radiotherapy treatment
Figure 14 Negative subthemes for Comment Box 6 - Chemotherapy/ Radiotherapy treatment
Figure 15 Positive subthemes for Comment Box 7 – Experience of cancer care
Figure 16 Negative subthemes for Comment Box 7 - Experience of cancer care