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It's Not Rare to Have a Rare Disease

It's Not Rare to Have a Rare Disease

Wednesday, July 9, 2014

ISBN: 9781784126575

The Implementation Plan for Rare Diseases in Scotland

Executive Summary

'It's Not Rare to Have a Rare Disease', describes how Scotland is currently contributing to the delivery of the UK Rare Disease Strategy committments and sets out areas for future partnership to deliver actions in:

• Empowering those affected by rare diseases

• Identifying and preventing rare diseases

• Diagnosis and early intervention

• Co-ordination of care

• The role of research in rare diseases.