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Review of Genetics in Relation to Healthcare in Scotland

DescriptionReview of Genetics in Scotland
ISBN0-7559-5177-8
Official Print Publication DateSeptember 2006
Website Publication DateSeptember 01, 2006

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ISBN 0 7559 5177 8
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Contents

EXECUTIVE SUMMARY
SUMMARY OF RECOMMENDATIONS
1. INTRODUCTION AND BACKGROUND
2. SCOPE AND TERMS OF REFERENCE OF THE REVIEW
3. THE REVIEW PROCESS
4. THE ETHICAL CONTEXT AND THE IMPORTANCE OF PUBLIC AND PATIENT AWARENESS AND ENGAGEMENT
5. OUTLINE OF GENETICS SERVICES AND RELATED PREGNANCY AND NEWBORN SCREENING SERVICES IN NHSSCOTLAND
6. THE DEVELOPMENT OF SCOTTISH SERVICES FOR GENETIC MEDICINE
7. ROLE OF PRIMARY CARE
8. EDUCATION AND TRAINING
9. RESEARCH/LIFE SCIENCES INDUSTRY LINKS
10. INFORMATION MANAGEMENT AND TECHNOLOGY SUPPORT FOR GENETICS IN SCOTLAND
11. THE WAY FORWARD
REFERENCES
APPENDIX 1: MEMBERSHIP OF THE REVIEW GROUP
APPENDIX 2: SUMMARY OF THE COMMITMENTS MADE IN THE ENGLISH WHITE PAPER
APPENDIX 3: PUBLIC ENGAGEMENT NETWORK
APPENDIX 4: STAFFING AND WORKLOADS OF SCOTTISH CLINICAL GENETICS SERVICES
APPENDIX 5: PROPOSED DEMONSTRATION PROJECT - THE APPOINTMENT OF A CLINICAL GENETICIST WITH EXPERTISE IN GENETIC NEUROMUSCULAR DISORDERS WITH A PAN SCOTLAND REMIT
APPENDIX 6: RELATIONSHIPS BETWEEN GENETICS SERVICES
APPENDIX 7: GENETIC LABORATORY WORKFORCE LEVELS
APPENDIX 8: NATIONALLY FUNDED CLINICAL SCIENTIST TRAINING SCHEMES
APPENDIX 9: PROPOSED DEMONSTRATION PROJECT - EMPLOYMENT OF GENERAL PRACTITIONERS TO DEVELOP A SHARED CARE MODEL FOR PATIENTS WITH GENETIC CONDITIONS ACROSS SCOTLAND
APPENDIX 10: SCOTTISH GENETIC RESEARCH NETWORK

Link to Executive's response to each of the recommendations ( http://www.scotland.gov.uk/Publications/2006/09/geneticsrecs)